Young Women’s Health Study
Phase: Recruiting
Condition(s): von Willebrand Disease
Other Study ID Number(s): R105306
What Is the Purpose of This Study?
Heavy menstrual bleeding (HMB) is common in adolescents, and an underlying bleeding disorder is a common cause of HMB. Von Willebrand Disease is the most common bleeding disorder (1% of general population). However, bleeding disorders remain under-diagnosed. We are testing the ability of quick tools (bleeding symptom survey and/or ferritin levels) to predict an underlying diagnosis of von Willebrand Disease in teens with HMB.
Who Can Take Part in This Study?
You can participate if you:
- Are 9 to 21 years old.
- Have had your first period.
What Will Happen During This Study?
Participants will have one visit to an outpatient clinic, where they will:
- Answer a few short surveys.
- If your survey answers suggest you have heavy menses or abnormal bleeding, you will also be asked to have a blood draw the same day.
Principal Investigator
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