Help Researchers Understand Medical Care Experiences for Adults and Parents of Children With Prune Belly Syndrome

Phase: Recruiting

Condition(s): Prune Belly Syndrome

What Is the Purpose of this Study?

The purpose of this study is to help researchers learn more about medical care experiences of adults and parents of children who have prune belly syndrome (PBS).

Who Can Take Part in This Study?

Adults (over age 18) and parents of patients who have PBS may be able to join this study.

What Will Happen During This Study?

Participants will:

  • Join a focus group with 6 to 12 other people.
  • Complete survey questions.
  • Consent to medical chart review.

Will We Be Paid for This Study?

No. Participants will not be compensated.

Principal Investigator

Canice E. Crerand
PhD

Psychology

Discover More Research
Explore additional studies relating to urology

Contact Us

Hailey Umbaugh
Study Coordinator
Send us an email at: Email

Have Questions?

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