Researchers Looking for Adults and Children With Prune Belly Syndrome Who Had X-Rays or Radiology Tests
Phase: Recruiting
Condition(s): Prune Belly Syndrome
What Is the Purpose of this Study?
To collect and study all types of X-rays and radiology tests of the muscles and bones of adults, teens and children with prune belly syndrome, to identify abnormal regions of muscles and bones. This will help doctors create better medical and surgical treatments for people with prune belly syndrome.Who Can Take Part in This Study?
People of all ages with prune belly syndrome who are willing to provide the researchers with their radiology imaging tests.
What Will Happen During This Study?
Participants will connect with the research study team by virtual visit or email. This will take about 1 hour and will include:
- Research consent
- Medical and surgical history questionnaire
- Family history
- Information on how to have radiology imaging test reports and imaging computer files sent to our research team
Will We Be Paid for This Study?
No. Participants will not be compensated.
Principal Investigator
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Baker Lab
Under the direction of Linda Baker, MD, the Baker Lab studies the genetics of genitourinary congenital conditions, with a primary focus on Prune Belly Syndrome (PBS).
Prune Belly Syndrome: 5 Things to Know
Prune belly syndrome is a rare birth defect. It affects the urinary tract, genitals and abdominal wall. Babies are born with it.
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