Autoimmune Liver disease Network for Kids (A-LiNK): Using Patient Data to Transform Care and Improve Outcomes for Children, Adolescents, and Young Adults with Autoimmune Liver Disease
Phase: Recruiting
Condition(s): Autoimmune Liver Diseases, Autoimmune hepatitis, Primary sclerosing cholangitis, Autoimmune sclerosing cholangitis
NCT Number: NCT05750498
What Is the Purpose of This Study?
Prospective registry to improve the delivery of care to patients with pediatric autoimmune liver diseases like autoimmune hepatitis, primary sclerosing cholangitis and autoimmune sclerosing cholangitis through QI initiatives and research.
Who Can Take Part in This Study?
People who may be eligible:
- All patients with a clinical diagnosis of pediatric autoimmune hepatitis, primary aclerosing cholangitis, or autoimmune sclerosing cholangitis, regardless of age, will be recruited to participate in the study.
For a full list of eligibility requirements, visit ClinicalTrials.gov.
What Will Happen During This Study?
The A-LiNK study is a multicenter registry that collects clinical and patient-reported information from children with autoimmune liver disease, including medical history, tests, treatments, treatment responses, health care visits, and overall well-being. Demographic and geographic information is also collected to better understand variations in autoimmune liver disease care.
Principal Investigator
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Liver Care (Hepatology)
Our center is an integral part of the Division of Gastroenterology, Hepatology and Nutrition at Nationwide Children’s, caring for a wide range of liver diseases through medical management and surgery.