Support Resources
Little Hearts, Inc.
Little Hearts, Inc. is a national organization with a mission to give support, education, resources, networking opportunities, and hope to families affected by congenital heart defects. Members are families from around the country who have or are expecting a child with a congenital heart defect. Through the support services, Little Hearts hopes to promote public awareness for this #1 birth defect.
Icing Smiles
Icing Smiles is a non-profit organization that gives custom celebration cakes and other treats to families dealing with the critical illness of a child. We know that the simple things, like a birthday cake, are luxuries to a family battling illness. Our goal is to make a custom cake for the ill child, or their sibling, that gives a temporary escape from worry, and creates a positive memory during a hard time.
Conquering CHD
Conquering CHD is aimed at improving the lives of those with congenital heart disease and their families through direct support and education.
The Children’s Heart Foundation
The Children’s Heart Foundation is a not-for-profit organization that funds the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.
Saving Little Hearts
Saving Little Hearts helps children with congenital heart defects and their families by giving emotional assistance and educational information through the giving of care packages.
Sisters By Heart
We are a volunteer organization that works to help moms with newly-diagnosed babies. We provide care packages to make your stay in the hospital a little easier. We also give resources to help you better understand HLHS. All our volunteers are moms with children who have HLHS and know what you are going through. We are here to help!
Courageous Parents Network
Courageous Parents Network is a non-profit organization and educational platform that orients, empowers and accompanies families and providers caring for children with serious illness.
Connecting Families
Connecting Families program links individuals who have already experienced diagnosis and management with those who are facing it for the first time. These one-to-one relationships inspire hope and offer the chance to ask personal questions and receive support from someone who has “been there.” The Parent-to-Parent volunteers are family members who have completed specialized training. They talk to families via telephone and/or email about the experience of congenital heart disease, guide them through the hospital system, and discuss available resources. For more information on Heart to Heart Connecting Families call (614) 722-6284.