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Sickle Cell Disease and Pain

Pain is a common problem for children with sickle cell disease (SCD). Sickled cells have a hard time moving through small blood vessels. They can pile up and clog the vessels, keeping oxygen from getting to certain parts of the body. This causes pain.

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Sickle Cell Disease and Fever

Children with sickle cell disease (SCD) are more likely to get infections, especially bacterial infections. The spleen helps to fight infections. In patients with sickle cell disease, the spleen does not work as well. Fever may be the first and only sign of infection.

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Developmental Milestones: 0 to 6 Months

Developmental milestones are skills or behaviors that most children will start or master by a certain age. Children reach milestones in many ways: speaking, learning, moving, and playing. There are things you can do with your child to help them reach these milestones.

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Posterior Pharyngeal Flap (PPF) Surgery

Posterior Pharyngeal Flap is a surgery done to help correct velopharyngeal dysfunction, or VPD.

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Management and Treatment of Neuromuscular Scoliosis in Spina Bifida

The spine helps keep us upright when we are sitting and walking. When a person who has spina bifida also has scoliosis, or spinal asymmetry, the spine is not straight. It may be because of curvature or twisting of the spine, usually in an "S" or "C" shape. This can progress over time.

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Intranasal Midazolam (Versed®) - Vial

Midazolam is given through the nose and is absorbed quickly. This medicine is used for both cluster and prolonged seizures.

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Nasopharyngoscopic Evaluation of Velopharyngeal Closure During Speech

Nasopharyngoscopy is a test that involves viewing the back of the nose and throat. This test uses a small tube-light camera, called an endoscope, to view this area while the child speaks.

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Kidney Injury

Your child’s belly has been injured. This has led to a kidney injury. An injury may be a cut, bruise, or tear.

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HIV Prevention

This Helping Hand™ is about how human immunodeficiency virus (HIV) attacks the immune system, how it spreads, and how to prevent it.

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Cochlear Implant: Care After Surgery

A cochlear implant will be put in one or both of your child’s ears. The information below will help you care for your child after their implant surgery. What to Expect Cochlear implant surgery normally takes 1 to 2 hours for each ear. Your child will likely go home the same day.

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