Williams Syndrome Clinic
The Williams Syndrome Clinic provides diagnostic, treatment and support services to children and adolescents with Williams syndrome and their families.
Services may include a comprehensive evaluation with special attention to the unique medical, developmental and behavioral problems experienced by children with Williams syndrome. Referrals to other specialty medical and therapeutic services, as well as a laboratory and radiologic assessments, are arranged as necessary.
- Children birth to age 12 will be scheduled for a full team evaluation.
- Children 13 and older will be scheduled with the developmental behavioral pediatrician and developmental psychologist.
Families will be linked with medical, educational, social and financial support in their communities as indicated, and resources are identified to assist them in meeting the unique needs of their child. A working relationship will be maintained with the child’s primary care physician.
Services are covered by most insurance providers. To expedite insurance coverage, we recommend a referral be sent to the clinic by the patient’s primary care physician. It is also recommended that the family contact their insurance company prior to visiting the clinic.
Your First Visit: What To ExpectHow long will it take? Who will we see? What should I bring? Learn what to expect at your first Williams Syndrome Clinic appointment.
Resources For Families
- What is Williams Syndrome?
- Williams Syndrome Association
- AAP Clinical Report: Health Care Supervision for Children With Williams Syndrome
"When I found out that my beautiful little girl had Williams Syndrome, I was lost. I had so many questions and concerns and I felt like I had nowhere to turn, until I met Marilee and all the amazing team members at the Williams Syndrome Clinic at Nationwide. They put my mind at ease and took the time to answer all my questions and truly help me understand this new journey we were on. They have stood by my side every step of the way and helped at every turn. They have become family and show they truly care about their patients."
"The Williams Syndrome Clinic at Nationwide Children's hospital is amazing for my family. The clinic is a great resource to us. The people at the clinic are caring and kind and always there for whatever we need. It is a place that my daughter feels safe and understood. We couldn't ask for a better support system. Thank you."
"The Williams Syndrome Clinic at Nationwide Children’s provides an invaluable resource to us as the parents of an eight year old daughter with Williams Syndrome. While our daughter receives various private therapies and sees her pediatrician on a regular basis, having a team of professionals at Nationwide Children’s to rely upon who have a wealth of experience in dealing with the many complexities of Williams Syndrome has been tremendously helpful. We always come away from our visits to the Clinic with information that is beneficial to the continued well-being and development of our daughter."
"My son was seen at the Nationwide Children's Hospital Williams Syndrome clinic several years ago. The experience was a very positive one--thank you!"
We found out Grayson had Williams Syndrome when he was just 8-weeks-old. He had a heart murmur and we were sent to a heart specialist for further testing.
The developmental and behavioral approach to care is provided by a multidisciplinary and interdisciplinary team that includes the following providers:
- Developmental-Behavioral Pediatrician
- Speech Pathologist
- Occupational Therapist
- Physical Therapist
- Social Worker
- Music Therapist
- Genetic Counselor
Request an Appointment
To refer your child for a new evaluation in the Williams Syndrome Clinic, please call (614) 722-6115.
If your family is in a crisis situation and needs immediate help, please call your county’s mental health crisis number. In Franklin County, Ohio, youth and adolescents 17 and under should call (614) 722-1800. Ages 18 and older should call (614) 276-2273. If outside Franklin County, please call 911 and/or go to your nearest local emergency department.
I requested an appointment. What happens next?
We will send a Clinic Intake Form, complete a brief questionnaire, collect demographic information and answer any initial questions about clinic during the intake call and will ask insurance information. We will then contact the clinic nurse, who will schedule the appointment.