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Rett Syndrome
Condition

Rett Syndrome

Rett syndrome affects the way the brain develops. This rare condition causes children to lose language and motor skills starting around age 6 to 18 months.

Bifid Uvula
Condition

Bifid Uvula

A bifid uvula, also known as a cleft uvula, is a uvula that is split in two. A bifid uvula may be an isolated finding or it may be related to submucous cleft palate. In cases of isolated bifid uvula, and in cases of submucous cleft palate without hypernasality, no surgical intervention is needed.

Pediatric Ptosis
Condition

Pediatric Ptosis

Ptosis is an eye condition that involves drooping of the upper eyelid(s). The eyelid may droop just a little, or enough to cover the pupil. Ptosis can prevent normal visual development and cause amblyopia (lazy eye). It can also block part of the visual field.

Craniopharyngioma
Condition

Craniopharyngioma

Craniopharyngioma is a rare tumor that develops at the central, bottom portion of the brain. It can affect the pituitary gland, optic pathway, and hypothalamus.

Legg-Calve-Perthes Disease
Condition

Legg-Calve-Perthes Disease

Legg-Calve-Perthes disease, often called Perthes disease, is an uncommon condition in children affecting the hip. Perthes disease occurs when blood flow to the ball at the top of the thigh bone (femur) temporarily stops. If the growing bone does not get enough blood, it dies and collapses.

Lichen Sclerosus (LS)
Condition

Lichen Sclerosus (LS)

Lichen sclerosus (LS) usually affects the area outside the vagina (vulva). The most common symptoms of LS are vulvar itching, irritation, pain and bleeding.

Perioral Dermatitis
Condition

Perioral Dermatitis

In this Helping Hand™ document, we discuss perioral dermatitis, which is a common dry or bumpy rash that can occur around the mouth, the nose and the eyes. To treat the rash, it is important to stop using any topical steroids. Instead, your child’s doctor may prescribe topical or oral antibiotics.

Peutz-Jeghers Syndrome (PJS)
Condition

Peutz-Jeghers Syndrome (PJS)

Peutz-Jeghers syndrome is an inherited syndrome which typically results in hamartomatous polyps throughout the digestive tract, lifetime cancer risk and blue/black freckling or macules that can be seen on the lips, mouth, nostrils, hands, feet and genitalia.

Labial Adhesions
Condition

Labial Adhesions

Labial adhesions, or labial agglutination, occur when the labia minor (inner lips of the vulva) are stuck together, covering the vaginal opening. The vast majority of girls with labial adhesions have no symptoms and do not require treatment as the adhesions will resolve on their own.

Atypical Teratoid/Rhabdoid Tumor (ATRT)
Condition

Atypical Teratoid/Rhabdoid Tumor (ATRT)

An atypical teratoid/rhabdoid tumor (ATRT) is a fast-growing tumor that grows in the brain or spinal cord. ATRTs usually occur in isolation, meaning the tumor does not spread to other parts of the body. 

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