Single Ventricle Program
Providing Specialized Care for the Most Fragile of Patients
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Single Ventricle Program
Through the Single Ventricle Program, The Heart Center at Nationwide Children’s Hospital is dedicated to helping children and families cope with the challenges of a single ventricle diagnosis and improve outcomes. The Heart Center is among only a handful of centers in North America that offer this dedicated service.
About the Single Ventricle Program
Approximately 1,000 children are born each year with a single ventricle heart defect, in which one lower chamber of the heart is either underdeveloped, too small, or missing a valve. Specific areas of focus for the program include outcomes for hypoplastic left heart syndrome after the hybrid procedure; feeding, nutrition and factors affecting neurodevelopmental outcomes for infants with single ventricle heart defects and parent and family support after diagnosis.
The mission of the Single Ventricle Team at Nationwide Children's is to improve mortality, morbidity and quality of life for children and families affected by single ventricle heart defects throughout their lifespan.
We have assembled a dedicated care team that consists of:
- Feeding and nutrition experts
- Nurses and Nurse Practitioners
- Developmental experts
- Social Work
- Physical Therapy
- Neurodevelopmental Physician
- Speech Therapy
- Occupational Therapy
- Pediatric Surgery
- Massage Therapy
- Child Life
- Quality Improvement Coordinator
- Fetal Medicine
- Family support services
Our team works seamlessly with our Fetal Cardiac, Cardiothoracic Surgery and Interventional Catheterization teams to provide the medical care and support that our children and families need. We utilize a holistic approach to aiding the child and family, addressing not only cardiac needs but also developmental, nutritional and psychosocial challenges. Our one team approach allows us to deliver superior care that is fully integrated across the care continuum.
Meet Our Patients
Baby Knox. One of about 40,000 children who will be born with a congenital heart defect in the United States this year. One of roughly 1,000 babies born with Hypoplastic Left Heart Syndrome in 2017. One of hundreds of tiny heart patients at Nationwide Children’s Hospital - where every kid is one of a kind. Follow Knox and his family in Part 1 of a series documenting their journey with HLHS.
Name: Walker B.
During his mother’s 20-week ultrasound Walker's mother learned her baby had hypoplastic left heart syndrome. Within a few days of his birth, Walker would need the first of three open-heart surgeries and eventually, a heart transplant.
Name: Deacon B.
Condition(s): Hypoplastic Left Heart Syndrome
Age Today: 12 Years
Deacon was just 10-days-old when he had his first open heart surgery. Deacon was born with Hypoplastic Left Heart Syndrome (HLHS) which is a condition where the left side chambers of the heart develop too small to work effectively.
Name: Makenzie R.
Condition(s): Right Hypoplastic Heart Disease
Age Today: 6 Years
Makenzie's mom was six months pregnant when a routine ultrasound revealed that her unborn daughter had a life-threatening heart defect – right hypoplastic heart disease. This meant that only one of the chambers in Makenzie’s heart was pumping blood.
The Heart Center's Home Monitoring Program arms parents with the ability to monitor weight and oxygen levels at home to help prevent illness and to provide early detection of changing cardiac status.
The Family Resource Center was designed by families and professionals to support patients and families during their time at Nationwide Children's Hospital, both inpatient and outpatient.
The Children's Clubhouse is a special place for preschool and school-aged children to play and learn while their siblings are in the hospital.
Do you feel like nobody understands what you're going through after your child's diagnosis? Nationwide Children's Hospital's Connecting Families program can match you with a peer who has gone through what you are going though. Learn more and apply here.
Since 2009, a group of clinicians, researchers, and parents from across 60 medical institutions have been collaborating to ensure that families of children, who receive a diagnosis of Hypoplastic Left Heart Syndrome (HLHS), and other univentricular hearts, have hope. Nationwide Children's was one of the first participating centers and has attended 14 semi-annual conferences. Parents have represented NCH at 100% of the conferences.
Provides innovative, arts-in-medicine supportive care programs for children coping with serious illness, their families, and the health care providers who care for them.
This working group focuses on process improvement, quality improvement, and patient and family education. A one-year commitment, our patient and family council is available to patients and families receiving both inpatient and outpatient care.
Single Ventricle Conditions
- Atrioventricular Septal Defect (AVSD) (right and left dominant)
- Double Inlet Left Ventricle (DILV)
- Double Outlet Right Ventricle
- Ebstein's Anomaly
- HLHS with a Restrictive / Intact Atrial Septum
- Hypoplastic Left Heart Syndrome
- Pulmonary Atresia with Intact Ventricular Septum (PA/IVS)
- Tricuspid Atresia
- Tricuspid Atresia with Transposition of the Great Arteries / Vessels (TGA)
Normal Heart Anatomy vs. Hypoplastic Left Heart Syndrome
Approximately 1,000 children are born each year with a single ventricle heart defect, in which one lower chamber of the heart is either underdeveloped, too small, or missing a valve. Learn how a Hypoplastic Left Heart is different from a “normal” heart and how it can be treated through a series of procedures.
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