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Condition

Hypoplastic Left Heart Syndrome

Hypoplastic left heart syndrome (HLHS) is a congenital heart defect where most of the structures on the left side of the heart are small and underdeveloped. The Hybrid approach, developed by surgeons at Nationwide Children's Hospital, is an alternative to Norwood open heart surgery for HLHS.

Condition

Factor V Leiden

Factor V (factor five) is a protein involved in the blood clotting process. Children born with Factor V Leiden produce a mutated form of Factor V that does not respond well to activated Protein C.

Condition

Vitamin D Deficiency

This Helping Hand™ covers vitamin D deficiency. Vitamin D keeps our bodies healthy and builds strong bones. It does this by helping the body absorb calcium and phosphorous from foods and supplements. If your child has a vitamin D deficiency it means they do not have enough vitamin D in their body.

Juvenile Fibromyalgia Syndrome

Juvenile Fibromyalgia Syndrome is a chronic pain condition characterized by widespread musculoskeletal pain. The symptoms begin in childhood or adolescence. JFS can run in families.

Condition

Dandy-Walker Syndrome

Dandy-Walker Syndrome (DWS) is a congenital condition where the cerebellum does not develop normally. The cerebellum is an area at the back of the brain that controls movement and balance. With DWS, parts of the cerebellum may never develop, may be very small, or may become filled with fluid.

Condition

Chronic Ankle Instability

Chronic ankle instability happens when your ankle keeps giving way, especially after many sprains. This makes it hard to walk or play sports without your ankle feeling weak or wobbly. It can happen even when you’re just standing still.

Condition

Diabetes: MODY

MODY is the name given to a collection of different types of inherited forms of diabetes that usually develop in adolescence or early adulthood. MODY stands for “Maturity-onset diabetes of the young” and was given that name because it acted like an adult type of diabetes but was found in young people.

Necrotizing Enterocolitis (NEC)

Necrotizing enterocolitis (NEC) is a disease of the bowel (intestine) of newborn infants.

Persistent Pulmonary Hypertension of the Newborn (PPHN)

In this Helping Hand™ document, we discuss persistent pulmonary hypertension of the newborn. PPHN is a life-threatening condition. Another term for high blood pressure is hypertension. In PPHN, blood is forced away from the lungs due to high blood pressure in the arteries that go to the lungs.