A diagnosis of type 1 diabetes can be overwhelming and frightening, particularly when it’s for your child. For families and children navigating a new diagnosis of type 1 diabetes, the transition involves both mastering the basics and gradually understanding more complex aspects of diabetes care.
Adjusting to this new diagnosis will take time, but with the right guidance and information, the process can, and will, become more manageable. Here are ten essential tips for newly diagnosed families:
Embrace the Manageability of Diabetes: Although some things may change, diabetes management can fit into your life without defining it. Children can and should still attend school and do their homework, play the sports they love, eat cake on their birthday, and go trick-or-treating on Halloween! The more you learn, the better you'll become at managing your child's diabetes in different situations.
Wear Your Tech: Technology, including wearable devices, is integral for optimal diabetes management for children of all ages and is recommended by national and international guidelines. Continuous glucose monitoring systems (CGMs) and insulin pumps can help to minimize the burden of diabetes while promoting safety and more precise management. Newer systems utilize automated insulin delivery or algorithms which can adjust the insulin doses based on CGM readings. Ask your child’s diabetes team for more information!
Get Comfortable with Your Health Care Team: Your diabetes care team is there to support you in managing diabetes at home, school, and work. Make the most of your clinic visits and do not hesitate to reach out with questions between visits. Frequent communication and understanding can improve diabetes care.
Prioritize Consistent Management: Serious acute and chronic complications from diabetes result from prolonged high blood glucose levels and build-up of ketones. Take your diabetes management routine seriously — do not skip glucose checks or insulin doses, and do not ignore your diabetes symptoms. Proper blood glucose management can help you avoid serious issues such as diabetic ketoacidosis (DKA) or vision, kidney, and heart problems long-term.
Set Up an Emergency Plan for Low Blood Glucoses: Diabetes can lead to life-threatening situations if blood glucose levels drop too low. Some tips to prevent this including wearing a medical ID, carrying your blood glucose meter, packing rapid carb snacks and glucagon, and ensuring that those around you know how to assist in emergencies. An up-to-date emergency plan is crucial, especially for school, sports, and other activities.
Adjust for Exercise, Travel, and Stress: Recognize that physical and emotional stress can impact blood glucose levels. Be prepared with extra vigilant management, hydration, and emergency supplies to handle these situations. Special circumstances like these make it even more important for you to have your emergency care plan organized.
Drive Safely: Adolescents and young adults must check their blood glucose every time before getting behind the wheel to ensure their own safety and the safety of those around them. Always carry a to-go bag of all necessary supplies (e.g. glucose test strips, insulin, glucagon, rapid carbs) wherever you go. Remember not to leave this bag in the car on very hot or very cold days.
Utilize Support and Online Tools: Join online diabetes support groups or connect with families locally through Nationwide Children’s Hospital. Check out websites from Breakthrough T1D and the American Diabetes Association. For those in college and young adults, check out The Diabetes Link. Nationwide Children’s Hospital resources such as the Diabetes Calculator for Kids and websites with practical guidance (e.g. for school) can make daily management easier.
Navigate Health Insurance: Good health insurance is essential for managing diabetes-related expenses. Investigate your options, understand your coverage, and plan for future needs to ensure continuous access to necessary supplies and care.
Remember that Advances Are Coming: Diabetes technology and research are progressing rapidly. While a cure may still be on the horizon, focusing on excellent care now ensures that your child will be in the best possible condition when new treatments or a cure become available.
By following these tips and staying proactive, you and your family can navigate the complexities of type 1 diabetes with greater confidence and ease. Over time, what once felt overwhelming will become a manageable part of your daily routine.
Jennifer Ladd, MD, MSc is on the endocrinology physician team at Nationwide Children's Hospital. She is also the founder and medical leader of the new Turner Syndrome Clinic at Nationwide Children's.
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