Support Groups

This page has links to websites with information about support groups for parents affected by birth defects. We hope you find these sites helpful. Please remember we don't control or endorse the information given on these websites, nor do these websites endorse the information given here.

Genetic Alliance Suite 404, 4301 Connecticut Avenue NW Washington, DC 20008-2369 Phone: 202-966-5557 Email:

National Down Syndrome CongressSuite 108, 30 Mansell Court Roswell, GA 30076 Toll free: 800-232-6372 (NDSC) Phone: 770-604-9500 Email:

National Down Syndrome Society666 Broadway, 8th Floor New York, NY 10012 Phone: 800-221-4602 or 212-460-9330 Email:

National Organization for Rare Disorders (NORD) 55 Kenosia Ave. Danbury, CT 06810 Phone: 203-744-0100 Toll free: 800-999-6673

SOFT (Support Organization for Trisomy 18, 13, and Related Disorders) 2982 South Union St. Rochester, NY 14624 Phone: 585-594-4621 Toll free: 800-716-7638 (SOFT)

The Compassionate Friends P.O. Box 3696Oak Brook, IL 60522 Phone: 630-990-0010 Toll free: 877-969-0010

Online Medical Reviewer: Haldeman-Englert, Chad, MDSather, Rita, RN

Date Last Reviewed: 8/1/2018

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