This page has links to websites with information about support groups for parents affected by birth defects. We hope you find these sites helpful. Please remember we don't control or endorse the information given on these websites, nor do these websites endorse the information given here.
National Organization for Rare Disorders (NORD) 55 Kenosia Ave. Danbury, CT 06810 Phone: 203-744-0100 Toll free: 800-999-6673
SOFT (Support Organization for Trisomy 18, 13, and Related Disorders) 2982 South Union St. Rochester, NY 14624 Phone: 585-594-4621 Toll free: 800-716-7638 (SOFT)
The Compassionate Friends P.O. Box 3696Oak Brook, IL 60522 Phone: 630-990-0010 Toll free: 877-969-0010
Online Medical Reviewer: Haldeman-Englert, Chad, MDSather, Rita, RN
Date Last Reviewed: 8/1/2018
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