Rare Disease Day 2022 – Save the Date!
Join us to raise awareness about rare diseases and its impact on patients and families. This program is part of a global observance.
When: February 22, 2022, 4-7:30 p.m.(Special program for children from 4-5 p.m.)
Who should attend: This virtual event is free and open to the public, including patients, their families and caregivers, health care providers and research professionals.
Location: The program will be livestreamed from the auditorium at the Nationwide Children’s Hospital Research Institute.
Confirmation: A confirmation e-mail with virtual connection directions will be sent to everyone who registers for the program.
Questions? Call Community Education at (614) 355-0662.
Keynote Address
Vanderbilt University
Founder, DADA2 Foundation
Research Update
Peter White, PhD
Senior Director, Institute for Genomic Medicine,
Nationwide Children’s’ Hospital
Clinical Care: Children’s Mental Health
Alana Goldstein-Leever, PsyD
Psychologist,
Nationwide Children’s Hospital
Advocacy
Murugu Manickam, MD
Genomic Medicine, Nationwide Children’s Hospital
Ohio Rare Disease Advisory Council Member