Rare Disease Day 2022 – Save the Date!

Rare Disease Day 2022

Join us to raise awareness about rare diseases and its impact on patients and families. This program is part of a global observance.

When: February 22, 2022, 4-7:30 p.m.(Special program for children from 4-5 p.m.)

Who should attend: This virtual event is free and open to the public, including patients, their families and caregivers, health care providers and research professionals.

Location: The program will be livestreamed from the auditorium at the Nationwide Children’s Hospital Research Institute.

Confirmation: A confirmation e-mail with virtual connection directions will be sent to everyone who registers for the program.

Questions? Call Community Education at (614) 355-0662.

Register Today

Agenda

Keynote Address

Chip Chambers, MD­
Vanderbilt University­
Founder, DADA2 Foundation


Research Update

Peter White, PhD­
Senior Director, Institute for Genomic Medicine,
Nationwide Children’s’ Hospital

Clinical Care: Children’s Mental Health

Alana Goldstein-Leever, PsyD­
Psychologist,
Nationwide Children’s Hospital

Advocacy

Murugu Manickam, MD­
Genomic Medicine, Nationwide Children’s Hospital
Ohio Rare Disease Advisory Council Member

Family Panel