Resources for Families
Cystic Fibrosis Foundation Patient Assistance Resources
- A network of resources to help with healthcare coverage and to find programs to help pay for treatment
- Website: www.cff.org/LivingWithCF/AssistanceResources
National Health Coverage & Income Assistance Programs
Cystic Fibrosis and Mental Health
Individuals diagnosed with a chronic medical illness, such as Cystic Fibrosis, are at increased risk of experiencing depression and anxiety.
Medicare
- Provides health care coverage for people with long-term disabilities (and most Americans age 65 and older).
- Phone: 1-800-MEDICARE
- Website: www.medicare.gov
Social Security Disability Insurance (SSDI)
- Provides income to people who are no longer able to work because of a disability; benefits are based on a person’s work history. People who receive SSDI are eligible for Medicare after 2 years.
- Phone: 1-800-772-1213
- Website: www.ssa.gov/disability
State Children’s Health Insurance Program (SCHIP)
- Provides health care coverage to uninsured children in families with incomes that are too high to qualify for Medicaid.
- Phone: 1-877-KIDS-NOW (1-877-543-766)
- Website: www.insurekidsnow.gov
Supplemental Security Income (SSI)
- Provides a monthly stipend to people with disabilities (and low-income Americans age 65 and older) to help meet basic needs for food, shelter and clothing. Individuals who receive SSI are often eligible for Medicaid.
- Phone: 1-800-772-1213
- Website: www.ssa.gov/pubs/11000.html
Ohio Assistance Programs
Medicaid
- Pays for healthcare for individuals who have low income.
- Phone: (614) 466-6282
- Website: www.jfs.ohio.gov/ohp/
Children with Special Healthcare Needs
- Provides assistance for health coverage to children with special health problems, like cystic fibrosis. Families that do not qualify for Medicaid may be eligible for this program.
- Phone: (614) 466-1700
- Website: www.odh.ohio.gov/wps/portal/gov/odh/know-our-programs/children-with-medical-handicaps/welcome-to
Adult Cystic Fibrosis
- Provides assistance for health insurance to adults with cystic fibrosis.
- Phone: (614) 466-1700
- Website: www.odh.ohio.gov/wps/portal/gov/odh/know-our-programs/children-with-medical-handicaps/welcome-to
- Note: Web site makes no reference to adult program, but program is funded by BCMH.
Children with Medical Handicaps (BCMH)
The Bureau for Children with Medical Handicaps (BCMH) is a health care program in the Ohio Department of Health (ODH). BCMH links families of children with special health care needs to a network of quality providers and helps families obtain payment for the services their children need.
