Shaping the Future of Cystic Fibrosis Care

Nationwide Children’s Participation at NACFC


  • April Hunt, MS- Quality Improvement and Best Practices in Clinical Research
  • Clarissa Pape, RD- An RD’s Role in Developing a Pediatric to Adult Transition Program


  • Michelle Hjelm, MD– Mental Health Screening as Part of Routine Adult Cystic Fibrosis Visits: A Quality Improvement Project
  • April Hunt, MS– Utilizing a Regulatory Coordinator to Improve Site Clinical Trial Participation
  • Benjamin T. Kopp, MD – CFTR Modulator Impact on Macrophage Function
  • Christopher J. Nemastil; Mary Dell, MD; and Linda Humston–QTC Intervals in CF Patients Receiving Selective Serotonin Reuptake Inhibitors
  • Grace R. Paul, MD; Kimberly J. Novak, PharmD; Christopher J. Nemastil, BA, BS; Michael Brady, MDStephanie Stack-Simone, BA, BS, CICAmy Leber, Ph.D.; and Stella Antonara, PhD– Identification of Mycobacterium Porcinum in Patients with Cystic Fibrosis: Pathogen or Contaminant?
  • Sneha Varkki, MD; Sumita Danda, MD; Jude J Fleming, PhD; Don Hayes, Jr, MD; Mark Splaingard, MD; and Grace R. Paul, MD– Cystic Fibrosis Experience From a Tertiary Medical Center in Southern India


  • Mark Minor, MD– Digestive Enzyme Cartridge (Relizorbtm) During Continuous Enteral Feeds Among Individuals with Cystic Fibrosis
  • Judy Pitts, CPNP;Terri Johnson, RN; Diana Gilmore, CCRP; Mike Drexel;Clarissa Pape, RD; LeeAnna Shepherd, RT; Deanne Seymour, LISW; Amy Wood, RN; Brian Maynard; John Heintz, MD; Mary Lynn Dell, MD; and Karen McCoy, MD–Successes Accomplished in the Development of a Transition Program for Patients with Cystic Fibrosis (CF)