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Duchenne Muscular Dystrophy: Improving Patient Care Through Teamwork
Duchenne Muscular Dystrophy (DMD) is a genetic disease that causes muscle weakness, eventual loss of the ability to walk, and failure of the heart and lung. Boys with DMD typically do not survive past their twenties, but standardization of care and cutting edge research is changing this outlook.
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Pai Lab
The Pai Lab studies the factors that influence how patients and their families manage prescribed treatments to manage a medical condition or illness. In addition, we develop and test interventions so that families feel confident, supported and can accurately deliver their child's prescribed treatments at home.