Join us for an afternoon of connection and community building for Nationwide Children’s Hospital patients and families living with rare, diet-related metabolic disorders. This is a great opportunity to meet others with the same or similar conditions, find a support group, and attend educational sessions containing both practical and fun topics relevant to navigating life with a complex condition.
Who Should Attend:
Patients, parents, caregivers, and family members affected by diet-related inborn errors of metabolism, including phenylketonuria (PKU); fatty acid oxidation disorders (MCAD, LCHAD, VLCAD); glycogen storage diseases; urea cycle disorders; galactosemia; homocystinuria; maple syrup urine disease; propionic acidemia; methylmalonic acidemia; isovaleric acidemia; tyrosinemia; glutaric acidemia type 1; and others.
Cost:
No charge to attend, but registration is required. Parking vouchers provided.