Rett Syndrome Clinic

Annual screenings and consultations for Rett syndrome patients and families

Rett Syndrome Clinic

When your child has a Rett syndrome diagnosis, it can feel overwhelming. There are so many appointments to schedule and specialists to see. If your providers are not nearby, travel can create extra stress on you and your child. That’s why Nationwide Children’s now offers a Rett syndrome clinic for patients and families to see multiple specialists during one annual visit.

Rett Syndrome Clinic Overview

The Rett syndrome clinic is designed to help your family find expert care no matter where you live. For patients who travel to Columbus, the clinic provides access to health care services in a single visit. During your child’s clinic visit, you will meet with a neurologist, as well as multiple specialists who provide annual screenings, consultations and referrals. During the appointment, your child will be seen by team members representing:

  • Occupational therapy
  • Physical therapy
  • Speech pathology
  • Psychology
  • Social work
  • And more

You also may receive referrals to other specialty clinics, such as:

Learn More About Rett Syndrome

Meet Your Care Team

Rett syndrome is a complicated condition. Your child deserves the best care to help them live their best possible life. Your family deserves health care providers who listen to your needs and offer solutions that work for you. At Nationwide Children’s, your care team is led by specialists who are experts in caring for and treating pediatric neurological disorders.

Our team continually strives to provide the best, most innovative care available for your child. We work with the International Rett Syndrome Foundation, comprised of parents and friends of those diagnosed with Rett syndrome who have walked this journey.

Nationwide Children’s has been named as an International Rett Syndrome Foundation (IRSF) Center of Excellence. To qualify as an IRSF Center of Excellence, clinics must have:

  • A physician director with expertise in Rett syndrome care
  • Health care services that meet the unique needs of individuals with Rett syndrome
  • Involvement in Rett syndrome clinical trials
  • An increased understanding of Rett syndrome through contributions to a clinical registry

This means you can feel confident that your child is in the best hands. Nationwide Children’s is internationally recognized as a leader in Rett syndrome care.

Christopher Beatty

Christopher W. Beatty

Christopher Beatty, MD, MAS, is an attending pediatric neurologist at Nationwide Children’s and assistant professor of Clinical Pediatrics and Neurology at The Ohio State University College of Medicine. He completed a child neurology residency, clinical neurophysiology fellowship and epilepsy fellowship at Seattle Children’s Hospital. He is board certified in neurology with special qualifications in child neurology, clinical neurophysiology and epilepsy. His clinical interests include Rett syndrome, complex epilepsy care including epilepsy surgery and dietary therapies for epilepsy.

Emily De Los Reyes

Emily C. De Los Reyes

Emily C. De Los Reyes, MD, is an attending pediatric neurologist at Nationwide Children’s and Professor of Clinical Pediatrics and Neurology at The Ohio State University College of Medicine. She serves as director of the Nationwide Children’s Batten Disease Center of Excellence and is lead specialist of the Pediatric Neurology Neurodevelopmental Clinic. She is also the lead autism specialist and the Neurology subspecialty chair of the Autism Treatment Network at Nationwide Children’s. Her research interests include Batten disease, neurodevelopmental disorders and La Crosse encephalitis.

Why Choose Nationwide Children's Hospital?

Currently, many families must travel for an entire day to visit a physician who is knowledgeable about Rett syndrome. Nationwide Children’s involvement in the Center of Excellence network helps mitigate this challenge. Its recognition as a leader in Rett syndrome care will make it a resource for local families as well as help to educate other physicians about Rett syndrome care.

We understand that this can be a difficult time. At Nationwide Children’s, our Rett syndrome team is here to support you and your family every step of the way. If you are worried about your child’s development, talk to your doctor.

Jumping Toddler

Support for Traveling Families

Are you coming to Columbus and need to plan an overnight stay? Global Patient Services can help.