THRIVE Resources

See our list below for care for differences/ disorders of sex development (DSD), complex urological conditions, and gender concerns. 

Differences/ Disorders of Sex Development Resources

DSD Guidelines: Handbook for Parents provides information for parents and their children with DSDs.

Androgen Insensitivity Syndrome and other Disorders of Sex Development Support Group (AIS-DSD) provides information on Androgen Insensitivity Syndrome (AIS) and similar conditions.

CARES Foundation, Inc. provides education and research for Congenital Adrenal Hyperplasia while providing the resources and the latest information available for managing life with CAH.

Hypospadias and Epispadias Association gives parents the information and education needed to make informed decisions about their child's care.

DSD Diagnosis Disclosure provides tips on how to talk to your child about their DSD diagnosis and explains why this disclosure is so important.

MRKH Organization offers support for women with Vaginal Agenesis through linkage with support and general information.

Complex Urological Resources

Association for the Bladder Exstrophy Community (ABC) is an international support network consisting of individuals with bladder exstrophy, parent-exstrophy support groups, and health care providers who work with patients and families living with bladder exstrophy. 

The United Ostomy Associations of America, Inc. (UOAA) is a national network for bowel and urinary diversion support groups in the United States. Its goal is to provide a nonprofit association that will serve to unify and strengthen its member support groups, which are organized for the benefit of people who have, or will have intestinal or urinary diversions and their caregivers. The UOAA is a national organization to provide support, information and advocacy to ostomates and their caregivers.

Gender Concerns Resources

TransOhio serves the Ohio trans and ally communities by providing services, education, support and advocacy which promotes and improves the health, safety and life experience of the Ohio trans individual and community.

TYFA (Trans Youth Family Alliance) works to create a society free of violence and harassment where gender differences are tolerated and respected. Through advocacy and education, TYFA partners with service providers, schools and communities to eliminate harassment of transgender youths.

Kaleidoscope Youth Center works in partnership with young people in Central Ohio to create safe and empowering environments for LGBTQ youth through advocacy, education and support.

Parents, Family and Friends of Lesbians and Gays (PFLAG) is a non-profit organization dedicated to advocating on behalf of gay, lesbian and transgender persons and providing support to their families, friends and the community.

Stonewall Columbus: Stonewall Columbus serves the Central Ohio LGBT community by providing a community center and offering programming and services that enhance the well-being and visibility of our diverse community through discovery, affirmation and celebration

The Genderbread Person is an infographic that breaks down gender identity, gender expression, biological sex, and sexual orientation into an easy to understand visual.

The Trevor Project is the leading national organization providing crisis intervention and suicide prevention services to lesbian, gay, bisexual, transgender and questioning (LGBTQ) young people ages 13-24. Trained counselors are here to support you 24/7. If you are a young person who is in crisis, feeling suicidal, or in need of a safe and judgment-free place to talk, call The Trevor Lifeline now at 866-488-7386.

World Professional Association for Transgender Health (WPATH), formerly known as the (Harry Benjamin International Gender Dysphoria Association (HBIGDA), is a professional organization devoted to transgender health.

Differences/ Disorders of Sex Development Books

Books for Parents

  • Wisniewski AB, Chernausek SD and Kropp BP (2012). Disorders of Sex Development: A Practical Guide for Parents and Physicians. The Johns Hopkins University Press, Baltimore, MD.

Books for Kids

Body Differences and Changes

  • Parr, T. (2001). It’s OK To Be Different. Hachette Book Group, New York, NY.

  • Payne, E. (1972). Katy No-Pocket. Houghton Mifflin Company, Boston, MA.

  • Tillman, N. (2005). On The Night You Were Born. Feiwel and Friends, New York, NY

  • Tillman, N. (2013). I’d Know You Anywhere My Love. Feiwel and Friends, New York, NY

Gender Expression

  • Kiernan-Johnson, E. (2012). Roland Humphrey is Wearing a What? Huntley Rahara Press, Boulder, CO.

  • Rothblatt, P. (2011). All I Want To Be Is Me.

Normalizing Different Ways to Have a Family

  • Curtis, JL. (1996). Tell Me Again About The Night I Was Born. Harper Collins Children’s Books, New York, NY.

  • Kasza, K. (1996). A Mother For Choco. Penguin Putnam Books, New York, NY.

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