The Family Advisory Council at Nationwide Children's Hospital is proud to award an annual recognition for excellence in family-centered care. This award is presented to an employee, health care provider or department of Nationwide Children's in recognition of their outstanding achievement in care that reflects excellence in the core concepts of family-centered care. Patients and/or family members of patients who have been treated at Nationwide Children’s are invited to submit nominations.
Nominated by the Groff Family
Beth began visiting our home in May to give factor to my 3 year old son, Ben. Our experience with Beth has been a great gift, as she's made an amazing impact on Ben's health and our family's happiness and well-being.
Being the parents of a son with hemophilia can be a very stressful job. Before Beth started coming, we lived on pins and needles, worried that Ben would fall and get hurt. We spent nights at the hospital, getting x-rays, o-scans and countless needle sticks. Ben became very attached to me, fearful if I left the room. I constantly felt uneasy, and my husband and I struggled together because of all the pressure. So after some time, we decided to try to treat Ben at home. We were warned that this probably wouldn't go well, but we wanted to try intravenous infusions before going to a port. I was concerned that Ben wouldn't feel safe in our home anymore, and I asked the nurse manager to please send us Mary Poppins. And that is who she sent! It was such a relief when Beth visited our house the first time and efficiently found Ben's vein in one stick.
She confidently walked in and said “Hello, Benny! What are you watching on TV?” She knows every Disney character and easily bonded with Ben (and Evie) over an interest in The Lion King, Lady and the Tramp and 101 Dalmatians. She's created a reliable Tuesday routine in our home. Ben has become so comfortable with Beth that he asks when she's coming and gives her a hug when she leaves. In the last few weeks, Ben hasn't even flinched at the needle stick.
I've also bonded with Beth. The tone is light on Tuesdays and we laugh together at the crazy coincidences in life; like that Ben's medicine is called Benefix or "Benny-Fix".
When we need to change our treatment approach, I'll definitely collaborate with Beth and ask her to help us make the decision because I respect her confidence and experience. She is also a wonderful mother who understands that the care we give to Ben affects the whole family, and no other doctor or nurse knows US as a family like she does! Beth is a great teacher, she takes the lead and shows me how to take better care of Ben. Soon she's going to write down the steps for mixing factor so I can begin the process of learning to infuse Ben myself.
In conclusion, I credit Beth for treating Ben and allowing our family some space to recover from early experiences with hemophilia care. She "fixes Benny" but a lot of things in our lives feel fixed because she comes over on Tuesdays. I don't always feel fearful anymore and I think this has changed the atmosphere in our home. Because Ben has factor in his blood, we can safely do fun things like visiting bounce houses, playing on playgrounds and walking (without a helmet or kneepads) on concrete at the pool. We haven't been to the hospital in at least 6 months, Ben isn't covered in bruises and when he bumps his head we can reassure him (and ourselves) that "It's ok. Beth gave you factor." Both my kids are having fun and we're all feeling normal, enjoying being a happy healthy family. We know that this is a priceless gift and we are so thankful to Beth for fixing Benny and helping us find our way in living with hemophilia!
Dignity and Respect – Health care practitioners listen to and honor patient and family perspectives and choices. Patient and family knowledge, values, beliefs and cultural backgrounds are incorporated into the planning and delivery of care.
Information Sharing – Health care practitioners communicate and share complete and unbiased information with patients and families in ways that are affirming and useful. Patients and families receive timely, complete, and accurate information in order to effectively participate in care and decision-making.
Participation – Patients and families are encouraged and supported in participating in care and decision-making at the level they choose.
Collaboration – Patients and families are also included on an institution-wide basis. Health care leaders collaborate with patients and families in policy and program development, implementation, and evaluation: in health care facility design; and in professional education, as well as in the delivery of care.
Partners in Care, Partners in Hope Award is given at the Annual Employee Recognition Dinner and Awards Ceremony in January. Nomination forms are available throughout the hospital, may be downloaded in a printable form for mailing, or can be completed online.
Recipients will receive a beautiful piece of artwork designed and created by a local artist.
Selection will be by the Partners in Care, Partners in Hope Award Committee composed of patients, caregivers, family members and select staff members.