Frequently Asked Questions About Hirschsprung Disease Treatment at Nationwide Children’s

How Will My Child Live With Hirschsprung Disease?

Hirschsprung disease occurs in 1 of 5,000 births. Hirschsprung disease and conditions related to the colon and rectum require lifetime care and management. Nationwide Children’s CCPR team is committed to providing optimal outcomes throughout the child’s lifetime. Every child we see is given an individualized treatment plan that can span every stage through their life, from infancy, through potty training, puberty, sexual function and childbearing. 

How Can I Speak With a Member of the CCPR Team?

Complete the form at the bottom of this page. A CCPR team member will contact you with next steps.

Does My Family Have to Travel to Columbus, Ohio, for a Consultation?

The CCPR team can schedule an initial remote video consultation with you, a nursing coordinator and a surgeon. This virtual consultation helps the team to learn about your child’s specific needs while answering your questions about the program and care. Complete the form to learn more.

How Do I Transfer My Child’s Care to Nationwide Children’s?

The first step is to connect with the CCPR team. Complete the form and a team member will be in touch.

Where Will I Stay If My Child Receives Care at Nationwide Children’s?

Nationwide Children’s treats patients and families from around the world. The Ronald McDonald House offers a home-away-from-home across the street from Nationwide Children’s. We also have a Global Patient Services team who can help with travel arrangements for patients and families. Complete the form to get started.

Connecting with Families

The Center for Colorectal and Pelvic Reconstruction at Nationwide Children’s maintains a network for families to privately connect with other families who have similar experiences, can understand what you are going through and can offer invaluable support.

Parent/Guardian Information

Child Information