With adult, teen and school-aged program tracks, the 2015 conference is designed to offer practical information, fun activities and the chance to meet and network with other families affected by muscular dystrophy.
Parents will hear updates on clinical research, genetics and therapy for muscular dystrophy, and have the opportunity to attend workshops on home adaptations and equipment, complex care and other specialized topics related to navigating the first years of diagnosis or growing up with muscular dystrophy.
With adult, teen and school-age program tracks, the 2014 conference was designed to offer practical information, fun activities and the chance to meet and network with other families affected by muscular dystrophy.
Guests had the opportunity to hear a variety of experts discuss current clinical research and care for neuromuscular diseases. In addition, a special talk, “Perspectives from an Electric Chair” was presented by Mo Gerhardt.
Videos of the sessions are available below.
The 2013 conference for parents, teens and school-aged patients included workshops, lunch, and fun activities, like cartooning with professional artist Thaddeus Draheim.
Watch here as kids who attended the event talk about living with muscular dystrophy.