Regional & National Support Services :: Nationwide Children's Hospital

Regional & National Support


The regional or national support services listed below are support networks that are frequently used by families at Children's Hospital. There are numerous other support organizations that are not listed below.

Group Name Contact Information Description
 
American Diabetes Association (ADA) Greg Winslow, Executive Director:
614.436.1917
The American Diabetes Association provides diabetes testing to see if a person is at high risk for diabetes. Other services include patient education, community education, professional education and Advocacy.
 
Batten Disease Support Group Lance Johnston
614.927.4298

1.800.448.4570

Internet:
www.bdsra.org

Support group for family members of children with Batten's disease
 
Brain Injury Association of Ohio Suzanne Minnich, Executive Director:
614.481.7100 or
1.800.686.9563
Services provided include support groups for kids, community education and prevention information.
 
C.A.R.E. For Fire Victims Edith Asbury, Founder
614.879.9460
Services provided include support for fire victims, their friends and families. Smoke detectors available at meetings - no fee. Fire safety programs are also available to educate groups on prevention techniques.
 
CHERAB of Ohio Columbus Speech & Hearing
614.263.5151
To educate and give support to families who have children with speech delays and disorders
 
Compassionate Friends of Central Ohio Dean Turner:
614.882.8986 or
614.887.4515
Bereavement group for parents, siblings and family members over 13 who need assistance in dealing with the loss of a child.
 
Crohn's and Colitis Foundation (Central Ohio Chapter) Kim Houf, Developmental Coordinator
Wallace Crandall, MD Medical Advisory Chair:

614-781-9970

Internet: www.ccfa.org

Adult support groups, OSU student support group, youth task force, email support group for children with Crohns and Colitis.
 
Epilepsy Foundation of Central Ohio Kristin Torres
614.228.4401 or
Carl Johnson
1.800.878.3226

Internet:
www.epilepsy-ohio.org

Offers support groups for parents, teens and adults with epilepsy.
 
Fetal Alcohol Support Network of Central Ohio Phil Petrosky, Coordinator:
614.755.4803

 

Services include information and educational support for those living with a child diagnosed with or suspected of having Fetal Alcohol Syndrome and Fetal Alcohol Effects.
 
Kinship Care for families Kinship Care Navigators:
614.358.2273
or toll free:
1.866.389.2273

Email:
kincarenav@chi.osu.edu

Support for those who are caring for the children of relatives. The navigator program will assist the families in finding resources for financial assistance, medical assistance for the children, support groups, education, child care, respite care, counseling and guidance assistance as well as food, clothing and legal information.
 
Neurofibromatosis 1&2

 

Support group for patients and family members who suffer from NF1 and NF2. In conjunction with the Acoustic Neuroma Association and the national Neurofibromatosis Foundation we welcome your referrals.
 
Ohio Family Care Association 614.268.7776

Internet:
www.ofcaonline.org

An organization of families who adopt, provide foster care or kinship care. Its purpose is to support these families through programs of education, support, advocacy and leadership.
 
Ohio SIBS Tom Fish:
614.292.7550

Email:
fish.1@osu.edu

Internet:
www.ohiosibs.org

Support groups and services for brothers and sisters of children with disabilities.

 

 
 
Survivors of Suicide - S.O.S

 

Carol Stewart, Facilitator:
614.276.2273
(NetCare ACCESS)
or
614.279.9382 to leave a message.
Services include support group meetings for family members and friends of persons who have committed suicide. Peer Crisis Counseling is also available by phone.

 

 


If you have any questions or need additional information, contact your health care provider or the Case Management at Children's Hospital (614-722-6300). This information will be updated periodically. If you are aware of changes or additions to this list please complete the update form and we will contact you to get additional information.
Nationwide Children's Hospital
700 Children's Drive Columbus, Ohio 43205 614.722.2000