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Factor is a medication used to treat hemophilia. Hemophilia is a blood clotting disorder that is caused by the body not producing a certain factor and is treated by replacing with that factor. At one time factor was made by pooled blood but now it is made by recombinant DNA technology. Factor can stop an active bleed or prevent a bleed if taken regularly into the vein.
Benefits of the Nationwide Children’s Hospital Homecare Factor Program include:
Lower costs for clotting factor products for hemophilia patients and families facing a lifetime cap on insurance benefits.
Coordinated care (Nationwide Children’s Hospital Outpatient Centers to Nationwide Children’s Hospital Homecare).
Safest and highest quality clotting products available.
Pediatric specialists understand the specific needs of children.
Same-day delivery of factor product to the patient’s home, and pickup and disposal of sharps containers.
Patient/Family Advisory Board to address patient care issues.
24-hour availability of care team.
Providing families with calendars to track their child’s bleeds and to send to the Hemophilia Treatment Center for analysis.
Patient/Caregiver support and education in the home.
A shared mission with the Hemophilia Treatment Center: “To join you, members of the bleeding disorder community and your families, to educate, inform, change and improve.”
Educational and support materials regarding hemophilia and its treatment, along with individual instruction to caregivers.
Supplying age-appropriate protective gear, such as elbow pads, knee pads and bicycle helmets, as requested.
Provides funding for Nationwide Children’s Hemophilia Treatment Center Programming.
Just remember whatever you do, don’t leave home without it. Some people have to wear glasses or braces or carry inhalers with them. A person with hemophilia needs to remember not to be far from home without factor. Leaving home without your factor is like jumping into the ocean without a life preserver, and no lifeguard on duty. Your Factor Care Coordinator will provide you with a travel cooler pack, so you can have your child’s factor with you at all times, wherever you happen to go.
The Nationwide Children’s Hospital Homecare Pharmacy is Joint Commission accredited – the highest accreditation a health care facility can meet, and thus follows the same pediatric standards as Nationwide Children’s Hospital. In addition, Nationwide Children’s Hospital Homecare is a Medicaid/Medicare-certified agency. Meeting the standards of governing bodies and exceeding the expectations of our patients and their families ensures each family of receiving the best pediatric hemophilia care in the central Ohio area.
Nationwide Children’s Hospital’s Homecare Infusion Pharmacy is a provider of factor for pediatric hemophilia patients in the state of Ohio. From the time a referral is received, our Factor Care Coordinator works with a care team. The Factor Care Coordinator plays a pivotal role on the child’s care team, and becomes the family’s primary contact for discussing any changes in the child’s factor needs or financial advice for their child’s care. The care team is available 24 hours a day, seven days a week, and consists of the child’s physician, Homecare pharmacist, primary nurse, social worker and Factor Care Coordinator.
Hemophilia is a disease that takes a major toll on the child and the family. Hemophilia is not yet curable, but it is “livable” for the patient. Learning where the boundaries are, and following a care plan that becomes a way of life for the patient and family, allows the child to be a “kid” and enjoy most physical activities with peers.
If you want to learn more about what the Nationwide Children’s Hospital Homecare Factor Program can offer you and your child, please call (614) 355-1100 or (800) 466-2727, and ask for the Factor Care Coordinator. For general information, Nationwide Children’s Hospital Homecare is open Monday – Friday between 8 a.m. and 5 p.m. (excluding national holidays). Our Factor Care Coordinator will be glad to answer your questions.