Helpful Support Group Links for Families :: Nationwide Children's Hospital

Helpful Links


Your physician and health care team are your best resource for information about your child's diagnosis. The following Web Sites may help gather general information about your child's diagnosis and help you identify national support networks for children with special health care needs.

Group Name Web Address Description
 
Family Village http://www.familyvillage.wisc.edu

 

Global internet community that integrates information, resources and communication opportunities for persons with cognitive and other disabilities, their families and their care providers.

 

Family Voices http://www.familyvoices.org

 

Families and friends speaking on behalf of children with special health care needs.

 

Infotrac Health Reference Center http://www.infotrac.galegroup.com

 

 

MUMS http://www.netnet.net/mums

 

National organization for parents or care providers of children with any disability or condition. Its main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have similar conditions.

 

National Organization for Rare Disorders http://www.rarediseases.org

 

Searchable database of organizations that provide support and services to families of children with rare disorders. Programs and services include: networking programs, medication assistance, medical equipment exchange and other helpful links.

 

Netwellness http://www.netwellness.org

 

Provides quality health information and education resources.

 

Prescription Drug Assistance Programs http://www.disabilityresources.org
/RX.html

 

Links to prescription assistance programs.

 

 


If you have any questions or need additional information, contact your health care provider or the Case Management at Children's Hospital (614-722-6300). This information will be updated periodically. If you are aware of changes or additions to this list please complete the update form and we will contact you to get additional information.

Nationwide Children's Hospital
700 Children's Drive Columbus, Ohio 43205 614.722.2000