The support group information listed below is not an all inclusive listing. This list includes only groups that are directly affiliated with Children's Hospital. This support group information is current as of the date of posting online. Date, times and contact information may change.
| Group Name | Contact Information | Description |
| Bladder Exstrophy |
Jo Beth Burns RN 614.722.5801 |
Open to families of children with Bladder Exstrophy, Cloacal Exstrophy, and Exstrophy variants like Epispadias. Our mission: To provide psychological support for patients, parents, and families; to provide education from trained professionals; to relay current medical therapies and resources; to facilitate the networking of families; and to create a safe place where families can improve the quality of their lives. |
| Celiac's Gluten Free Gang |
Mary Kay Sharrett, RD 614.722.3093 |
To provide support to Columbus area patients with Celiac disease and their families and to share information and ideas about living a Gluten free life style. The group also works to education the community about Celiac disease. |
| Cystinosis Day |
Lauri Takacs, RN & Marla McNabb, RN 614.722.4364 |
Provide a yearly opportunity for families to meet with other families of children with cystinosis. |
| Encopresis |
Amy Donegan, RN, PNP 614.722.3460 |
The goal of the Encopresis support group is to provide accurate information to parents and their children that have this illness. The group provides a forum for families to talk to other people with similar issues. The support group is intended to be for parents and children, but currently only the parent support group is meeting. As the program grows, we will begin adding the sessions for children of different ages. |
| Healing Treasures |
Pastoral Care 614.722.5250 |
Healing Treasures is a six-week family centered program to help brothers and sisters who have experienced the death of a sibling. Nationwide Children's has the only program in Columbus targeting the specific needs of sibling grief. Learn more. |
| Look Good Feel Better (for Cancer Patients) |
Faye Bullio, ACSW, LISW 614.722.6340 |
Purpose is to educate and to support teens with Cancer who suffer hair loss during radiation and/ or chemotherapy. More information is available through the American Cancer Society. Also information is avaiable at: http://www.2bme.org/2bMe.html. |
| OLEY Foundation |
Patti Kegley RN 614.722.2196 |
National support foundation for families with members who receive enteral feeds, TPN or J/G-Tube feeds. http://www.oley.org Local support group for families who live in the central Ohio area. |
| Parent Resource Line | 614.224.2273 |
Being a parent is the toughest job in the world, and you can't do it alone. The Parent Resource Line is available to assist you with questions on resources in your community, and to provide information on positive parenting, how to find good, safe child care, effective discipline techniques and general information on child abuse and neglect. Callers may also receive referrals to additional local community resources. |
| Parents of Murdered Children (POMC) |
Vicki Peterson, MSW 614.278.3377 |
POMC® provides on-going emotional support, education, prevention, advocacy, and awareness to all survivors of homicide victims while working to create a world free of murder. Membership is open to those who have been bereaved by the murder of a loved one. Professionals who are in frequent contact with grieving families are also welcome to join. |
| Seasons for Caring (Hospital Family Bereavement Group) |
Susan Kyser 614.722.5250 |
A support group for parents who have had a child die. Open to all parents who have experienced the death of a child. |
| Sickle Cell Disease |
Tanica Jeffries and Sandy Steiner 614.722.6348 |
Parent and care giver support and educational group to help families adjust and cope with Sickle Cell disease. There are also quarterly meeting for the whole family with activities for the children and their siblings. |
| SIDS | Charles Reiner, MD |
SIDS parents and individuals support one another through the tragic sudden, unexpected loss of an infant. The support group facilitator as well as the Central Ohio SIDS Affiliate is a SIDS parent. There is also website with helpful information: http://www.sidsfamilies.com. |
| Spina Bifida Association of Central Ohio | Laurie Schulze, Pres. 614.818.3840 |
Information support network for families of children with Spina Bifida. |
If you have any questions or need additional information, contact your health care provider or the Case Management at Children's Hospital (614-722-6300). This information will be updated periodically. If you are aware of changes or additions to this list please complete the update form and we will contact you to get additional information.