Every person is different and handles situations differently, but hearing for the first time that your child has cerebral palsy is difficult for any parent. “What does this mean for my child?” and “Now what?” are common questions parents ask after learning of the diagnosis. Learning to navigate the numerous medical and community resources can be challenging. Caring for a child with special needs can also be very emotionally difficult and can create stress upon the family.
Every county is different in the services offered to children with special needs. It is important to become educated about what services are offered in your area. There are many social workers at Nationwide Children's Hospital who would be happy to help you access all appropriate services for your child. Ask your physician or the nurse to link you with the clinic social worker and she will be happy to help you with any needs or questions that you might have. You can also call the Clinical Services and Care Coordination Department at (614) 722-6300 and ask to speak to a social worker.
Finding other parents who are experiencing similar situations can also be very helpful. It is often helpful to talk to someone who understands what you are going through and has gone through similar difficulties. This is also a good way to get “first hand” information on how the system really works and tips on how to navigate the community agencies.
The following is a list of community agencies, websites, and literature that can be helpful to you throughout your journey with your child:
To learn more about CP, visit the CDC website.
To find the contact information for your local Help Me Grow.
To find the contact information for your county DODD.
For the current Summer Camp Directory and Family Resource Directory, contact the State Support Team - Region 11 or call (614) 542-4189