Wellstone Center Events

Wellstone MDCRC Events

The 4th Annual Wellstone Center Muscular Dystrophy Parent/Patient Family Conference at Nationwide Children's Hospital

2015 Wellstone Conference Save the Date image

The 4th Annual Wellstone Center Muscular Dystrophy Parent/Patient Conference will be held on Saturday, April 11, 2015 at Nationwide Children's Hospital's Education Center in Columbus, Ohio. 

With adult, teen and school-aged program tracks, the 2015 conference is designed to offer practical information, fun activities and the chance to meet and network with other families affected by muscular dystrophy.

Parents will hear updates on clinical research, genetics and therapy for muscular dystrophy, and have the opportunity to attend workshops on home adaptations and equipment, complex care and other specialized topics related to navigating the first years of diagnosis or growing up with muscular dystrophy.

To register, visit the Community Education portal on the Nationwide Children's Hospital website.

  • Click on the link to be taken to the education portal ("Click here for Information on Education Programs")

  • In the Keyword Search bar, type in "Wellstone" to find the 2015 Muscular Dystrophy Conference. Clicking on the link in the Search Results will take you to additional information on the Conference.

  • To register, add the course to your Shopping Cart and follow the instructions provided to complete the registration process.

If you have additional questions about the event, please email CommunityEducation@NationwideChildrens.org or call (614)-355-0662.

Past Events

The 3rd Annual Wellstone Center Muscular Dystrophy Parent/Patient Conference at Nationwide Children's Hospital

With adult, teen and school-age program tracks, the 2014 conference was designed to offer practical information, fun activities and the chance to meet and network with other families affected by muscular dystrophy.

Guests had the opportunity to hear a variety of experts discuss current clinical research and care for neuromuscular diseases. In addition, a special talk, “Perspectives from an Electric Chair” was presented by Mo Gerhardt.
Videos of the sessions are available below.
 

Molecular Therapy for Neuromuscular Diseases
Jerry R. Mendell, MD

Molecular Therapy for Neuromuscular Diseases

Genetic Modifiers in DMD: How Do We Explain Variation Between Boys?
Kevin Flanigan, MD

Genetic Modifiers in DMD: How Do We Explain Variation Between Boys?

Care in Muscular Dystrophy: Everything Else
Garey Noritz, MD, FAAP, FACP

Genetic Modifiers in DMD: How Do We Explain Variation Between Boys?

Cardiac MRI: Revealing Duchenne Muscular Dystrophy-Associated Heart Disease
Kan N. Hor, MD

Cardiac MRI: Revealing Duchenne Muscular Dystrophy-Associated Heart Disease

Cardiac Care in DMD: The Heart is a Muscle Too
Linda Cripe, MD

Cardiac Care in DMD: The Heart is a Muscle Too

Perspectives from an Electric Chair
Mo Gerhardt

Perspectives from an Electric Chair

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The 2nd Annual Wellstone Center Muscular Dystrophy Parent/Patient Conference at Nationwide Children's Hospital

The 2013 conference for parents, teens and school-aged patients included workshops, lunch, and fun activities, like cartooning with professional artist Thaddeus Draheim.

Watch here as kids who attended the event talk about living with muscular dystrophy.

Nationwide Children's Hospital
700 Children's Drive Columbus, Ohio 43205 614.722.2000