This is a family resource guide on frequently asked questions for parents and families who learn that their unborn child will be born with a birth defect. This general guide is to help answer some of your questions. It is important to talk to your doctor or health care professional if you have specific questions regarding your pregnancy and situation.
Yes! The health care team encourages mothers to provide breast milk to their baby. Breast milk has nutrients and infection-fighting antibodies that all newborns need to grow and develop. If you decide that you want to provide breast milk and your baby will need special attention after birth, you will need to pump and store your breast milk in the freezer until it is time for your baby to take your breast milk. If you would like to speak with a lactation specialist at Nationwide Children’s call (614) 722-5228.
You will deliver your baby at a hospital that is prepared to care for high-risk babies. Immediately after your baby is born, the newborn specialists called neonatologists will be in the delivery room to examine your baby. The doctors will examine your baby’s breathing and color first. If the baby is having problems breathing a special tube called an endotracheal tube will be placed in the airway to help your baby breathe. During this time parents will not be allowed to hold the baby. If the baby cannot take breast milk or formula, an intravenous line will need to be started to prevent dehydration. The neonatologist (baby doctor) and nurses will keep you updated on what is happening to your baby every step of the way.
This is a very difficult time for parents and families who find out that their unborn child will be born with a birth defect. Questions of, “Why did this happen to me?” are very normal during this time. The exact reason why this happened to your baby is sometimes very hard to discover. Research shows that it is usually a combination of many factors.
Parents often ask themselves if they did something to cause this to happen to their baby. That is a very natural response. In the vast majority of cases, parents have no control over their baby’s condition and have not done anything to result in the situation. If you have a specific concern about a medicine, illness or exposure, you should ask your doctor.
Technology has helped diagnose conditions before a baby is born. The information the doctors have now will help prepare for the delivery of your baby. While you are pregnant, doctors can explain the range of events that may occur after birth. After your baby is born a newborn specialist called neonatologist will examine your baby.
An amniocentesis is a prenatal diagnostic test that can help diagnose or rule out some chromosomal abnormalities and sometimes other conditions. It is important to talk with your doctor about the risks and benefits of this test. This test may give you and the doctor more information about the cause on the ultrasound findings and may help plan for the delivery and care of your baby.
To help plan for your future pregnancies it is recommend that you meet with a geneticist, maternal fetal medicine doctor (high-risk pregnancy doctor) or obstetrician before conceiving (becoming pregnant) again. They can help to determine what your risk may be for a future pregnancy. They can also make recommendations.
Your doctor will have a detailed plan to watch your pregnancy very closely. For pregnancy related questions and concerns please call your obstetrician or maternal fetal medicine specialist (high-risk pregnancy doctor). If you have questions regarding Nationwide Children’s Hospital, Fetal Medicine Department, you may contact the nurse coordinator at (614) 722-6520.
It is important that you follow all recommendations from your doctor. Get plenty of rest, eat a well-balanced diet and take your prenatal vitamins. It is important to stop smoking and avoid second hand smoke (people who smoke around you) during pregnancy. Avoid alcohol and other drugs during pregnancy.
You will have the opportunity to meet with pediatric specialists at Nationwide Children’s to discuss fetal diagnosis, anticipated recovery and potential outcomes while providing supportive care. During your visit, the nurse coordinator will provide information and a tour of Nationwide Children’s Hospital.
For pregnancy related questions and concerns please call your obstetrician or maternal fetal medicine specialist (high-risk pregnancy doctor). If you have questions regarding Nationwide Children’s Hospital, Fetal Medicine Department, you may contact the nurse coordinator at (614) 722-6520.
Everyone approaches this differently, but it is normal if you do not want to talk about it right away to family and friends. When the time is right and when you feel comfortable sharing, sit down and tell them openly and honestly about the situation.
Telling your children about the new baby’s health problem may help to prepare them for the special attention your baby will need after birth. Consider keeping the explanation brief, but allow your children to ask questions. Your children may be scared at first, but telling them may help ease their concerns. It is also important to tell your children that the baby will have to stay in the hospital for a while or possibly months.
There is a transport team at Nationwide Children’s that specializes in transporting babies from the delivery hospital to Nationwide Children’s Hospital. The transport team consists of certified nurse practitioners, registered nurses, respiratory therapists and paramedics. The neonatologist (baby doctor) at the delivery hospital will decide on the timing of transfer to Nationwide Children’s Hospital. The parents will have an opportunity to meet the transport team prior to your baby being transported to Nationwide Children’s. Watch a video about a family experiencing this process at NationwideChildrens.org/Transport.
Nationwide Children’s offers a Connecting Families Mentor Program. The purpose of this program is to link families who have been there with families who are just getting started so they can help each other normalize life after diagnosis. You can get more information, and request a mentor, at NationwideChildrens.org/Connecting-Families.
This can vary. The pediatric specialist will be able to give you an estimated length of hospital stay depending on the baby’s condition and diagnosis. Each child is different and the doctors can only give you a general idea about the length of stay. Sometimes the stay is shorter or much longer.
It is very difficult when you, as parents, are not able to hold your baby. The health care team will allow you to hold your baby as soon as he or she is stable, and it is safe for your baby to be held.
At Nationwide Children’s, parents and grandparents may visit 24 hours a day. For all other visitors, the visiting hours are 8 a.m. to 9:30 p.m. The Neonatal Intensive Care Unit (NICU) allows siblings to visit as long as they are up to date with their immunizations and not running a cold or fever. All other visitors must be 12 years or older. During the influenza (flu) season Nationwide Children’s may restrict visitors and siblings to help protect the children and babies at the hospital.
Please note the following about visiting:
White Parent Badge
Must be worn at all times. Go to Admitting office to obtain parent badges.
Guest Code Guidelines/Visitor Badge
The guest code is a password you create for family and friends who may potentially visit your child while he or she is a patient. All visitors are required to provide this code before they will be permitted access to the inpatient areas of the hospital. Stop by the information desk in the main lobby to receive your Visitor Badge. Visitors under the age of 12 must have an infection checklist completed at the welcome desk in the lobby. If any exposure or symptoms exist, visitor may not visit.
Blue Legal Guardian Bracelet
The blue legal guardian bracelet is an important piece of identification for both the clinical staff and security staff. We ask that you wear the bracelet the entire time your child is in the hospital.
White Key Card
This will grant you access to the elevators and doors of the unit where your child is staying.
Nationwide Children’s Hospital Naming Policy
During your baby’s stay, the mother’s last name from the birth hospital will be used to identify your baby for this hospitalization. If the name on the birth certificate is different, then the birth certificate name will replace the hospital name when your baby is discharged to go home.
Nationwide Children’s Hospital Welcome Center assists out-of-area and international families with concierge services such as travel arrangements, lodging and connections to needed resources to make the family’s visit to Columbus as comfortable as possible. Contact the Welcome Center at (614) 355-9866 or email WelcomeCenter@NationwideChildrens.org for more information or to request services.
Ronald McDonald House of Central Ohio is located within walking distance from Nationwide Children’s Hospital. Families who live outside of Franklin County may stay at Ronald McDonald House while their child is in the hospital. Ask the nurse coordinator if this can be arranged for you. For more information, visit NationwideChildrens.org/Ronald-McDonald-House.
Timing varies from baby to baby. It also depends on whether the baby needs surgery. If your baby cannot take breast milk or formula right away, he or she will receive nutrition through an IV (intravenous line).
Yes, having your baby in the hospital is very stressful. There will be many pediatric specialists taking care of your baby. While your baby is in the hospital you will meet the support team who are available to help support you during this stressful time. The support team consists of psychologists, chaplains, social workers, family liaisons and nurses. Please speak with the nurse coordinator about support services if you have any questions or needs before the birth of your baby.
- Baby clothes with side/front snaps. Make sure clothes are labeled with baby’s name and are clean and free of strong odors.
- Baby blankets
- Mobile once baby is in open crib
- 1-2 small stuffed animals
- 1-2 pictures of family to tape on hospital bed
- No balloons or live plants
You will want to find a local pediatrician to take care of your baby’s routine checkups, immunizations and doctor’s visits before you go home from Nationwide Children’s Hospital. The pediatric specialist at Nationwide Children’s will follow up with your baby’s medical and or surgical needs. It is best to choose a pediatrician while you are pregnant in order to avoid any delays in the discharge process.
Absolutely! We understand that this is a difficult time for you and we encourage parents to take breaks and get plenty of rest outside of the hospital. When you are calling to get an update we will ask you the “Care Code” which is the last 4 digits of the current account number. The number will be located on your blue wrist band. We only give information to parents over the phone.
Nationwide Children's Resources
Learn more about resources available to you by clicking the links below.
This is a free service for brothers and sisters between the ages of 3-11 years old. Siblings of children receiving inpatient or outpatients services are welcome. The Clubhouse is located on the first floor of the hospital on the green path, near the Magic Forest. Child Life Specialists staff this safe and supportive place and help address many of the concerns siblings may have. Hours are 8 a.m. to12 p.m. and 1 p.m. to 8 p.m. on weekdays. On Saturdays, hours are 1 p.m.to 4 p.m. The Clubhouse has rules that will be reviewed at the time of visit.
Family Health Information Center
A multimedia-friendly library is available to parents to provide child-related health resources. These resources can enhance your understanding of the medical issues affecting your child. The librarians are very helpful and willing to assist you at any time. Computers with Internet access are available. The library is located on the second floor of the Education Building located on the blue path. Hours for the library are Monday through Thursday 8:30 a.m. to 7 p.m. and Friday 8:30 a.m. to 5 p.m. The library is closed weekends and holidays.
Family Resource Center
The Columbus Blue Jackets Foundation Family Resource Center was designed by families and professionals to support patients and families during their time at Nationwide Children’s Hospital, both inpatient and outpatient. The center provides the following services: library resource room, family learning lab and classroom, lounge, exercise area, kids’ corner, laundry room, infant feeding room, showers and lockers. The Family Resource Center is staffed Monday through Thursday from 8 a.m. to 8 p.m., Friday from 8 a.m. to 4:00 p.m. and weekends from 9 a.m. to 2 p.m. When it is not staffed, security can assist families with access to the Center. If you need to contact the Family Resource Center, please call (614) 722-2252.
Car Seat and Passenger Safety
Specialists are available provide guidance and education about car seats, distribute car seats and perform car seat installation checks for families. Call (614) 722-6524 for more information.
These services are available at no charge in every county in Ohio. Children between birth and age three who have been diagnosed with or have a suspected developmental delay and their families are eligible. “Help me Grow” services can be initiated at Nationwide Children’s Hospital during the hospital stay. Call (614) 722-4278 for more information.
During this stressful time, social services will help answer questions regarding financial issues, applying for insurance and finding support and resources in the community. To contact a social worker call (614) 722-6200.
There are many financial programs available to help assist families of children with medical needs such as:
- BCMH (Bureau for Children with Medical Handicaps)
- Healthy Start
- Early Childhood Developmental Program
- Social Security/Disability
- Waiver program
- Hospital Financial Aide and Hospital Care Assurance Program
Chaplains are available at any time for spiritual and emotional support to those of all faiths and ages. You can reach a chaplain by dialing (614) 722-5250. Our chapel is an interfaith sanctuary for persons of all faiths, cultures and ages. The Chapel is located on the first floor next to C elevators.
Patient and Family Relations
Should you have any questions or concerns about your experience at Nationwide Children’s Hospital you can contact the Patient Relations Department at (614) 722-6593.
Safety and Security — Call (614) 722-2128
Security can provide vehicle and foot escorts at Nationwide Children’s Hospital, vehicle assistance, such as door unlocks, and battery jumps.
Family Gift Cards
Nationwide Children’s offers family gift cards for families of hospitalized children. Contributions for a family gift card can be made by calling (614) 722-9265 or (614) 722-1504. Gift Cards can be used in the cafeteria, gift shop and outpatient pharmacy. The card can be reloaded at any time and used during any future visits to Nationwide Children’s Hospital.
Self-parking is available in one of four visitor parking areas for a minimal fee.
Hospital Parking Garage
The Hospital Parking Garage, an underground parking garage located immediately in front of our main hospital on Children’s Drive, is the ideal parking spot for those visiting inpatients.*
Outpatient Care Parking Garage
The Outpatient Care Parking Garage, located at the corner of Mooberry Street and 18th Street, is the ideal parking spot for those with clinic appointments.*
Emergency Department Parking
Emergency Department Parking is located off Children’s Drive next to the Emergency Department entrance.
Urgent Care Parking
Urgent Care Parking is located off Children’s Drive next to the Urgent Care entrance.
*Visitors parking in these areas will be issued a time-stamped ticket when entering. These tickets will determine each visitor’s parking fee. Visitors can pay their parking fee inside the hospital by using the various “pay-on-foot” stations or you can pay from your vehicle as you exit.
Handicap Parking Options
All of Nationwide Children’s parking lots offer handicapped parking. Those requiring handicapped parking for high-top vans are encouraged to speak with Patient Relations by calling (614) 722-6593 for more information.
Valet parking is available for $5 at the main hospital entrance, the Children’s Gateway Entrance and the Outpatient Care entrance. When you park, you will receive a valet stub. When you are ready to leave, you may call five minutes ahead and they will have your vehicle ready for you at the valet parking area. Call-ahead information will be printed on your stub.
- Located on the lower level of the main hospital
- A regular coffee or 12oz soft drink is free with your parent ID badge.
- Open from 6 a.m. to 8:30 p.m. and 2 a.m. to 4:30 a.m.
- An espresso bar and ice cream shop located in the main hospital on the Blue Path.
- Open Monday through Friday from 7 a.m. to 7 p.m.
- The Magic Bean closes at 5 p.m. on weekends and holidays.
- An espresso bar located in the Outpatient Care Center on the Orange Path
- Open Monday through Friday from 7 a.m.to 5 p.m.
Bistro at the Food Court
- A smaller Food Court located on the lower level of the educational building
- Open Monday through Friday from 6:30 a.m. to 3 p.m.
- Located in the Food Court on the lower level of the Education Building
- Subway is open 24 hours a day.
Mark Pi’s Koko’s
- Located in the Food Court on the lower level of the Education Building
- Open Monday through Friday from 10:30 a.m. to 10 p.m.
- Open on weekends from 11 a.m. to 9 p.m.