Name: Raegan


  • Apert Syndrome


  • Center for Complex Craniofacial Disorders

Age Today: 11 Years

Meet Raegan

Raegan was born six weeks early with a head full of dark hair. After her birth, Raegan was immediately transferred to Nationwide Children's Hospital where a team of doctors diagnosed her with a rare genetic disorder called Apert Syndrome.

Raegan’s mom, Ashley, says, “It was the most settling moment of our lives. We had answers. Nationwide Children’s Hospital has provided us with so much support, guidance and help throughout Raegan's life that we are forever grateful.”

Today, Raegan is doing well and recovering beautifully after her last surgery. She loves playing with her baby dolls, going to dance class, gymnastics and eating ice cream.

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