March is CP awareness month. We want to take this opportunity to update you on the many services and programs offered at Nationwide Children's Hospital (NCH) as well as in the community for those who have CP. [more...]
Not only are we passionate about providing the best medical care for children with CP, we are committed to providing education and advocacy to help remove barriers that prevent children with CP from fully participating in their community.
Nationwide Children's Hospital (NCH) and the Comprehensive CP Program are committed to caring for children who have been diagnosed with CP. We are grateful that others in the community have recognized this commitment and want to partner with us as we continue to move forward with our efforts. [more...]
We would like to take this opportunity to thank the following donors for their recent gifts to support the clinical and research goals of the NCH Comprehensive Cerebral Palsy Program. With their help, we will continue to provide the highest quality and most cutting edge care for children with CP.
“The Pedal-with-Pete Foundation is a philanthropic organization dedicated to raising funds for research to improve the quality of life for persons with cerebral palsy.” The Foundation was established in 1993 by Pete Zeidner who himself has CP. [more...]
Every year, the Foundation sponsors the “Ride, for Pete’s Sake” with the proceeds supporting CP research all over the country. With everyone’s help, the Pedal with Pete Foundation will continue to provide the support necessary to help improve the quality of life for all who have been diagnosed with CP.
The next “Ride, for Pete’s Sake” will be Saturday, August 13th, 2011. To learn more about Pete Zeidner, the Pedal with Pete Foundation, and their annual bike ride you can visit their website at www.pedal-with-pete.org. You can also contact Cathy Levy at 614-527-0202 or email email@example.com.
It can be a really confusing and scary time for parents upon learning that their child has CP. “Now what?” is a common thought and feeling expressed by parents. Learning to navigate medical and community resources can be very difficult. Caring for a child with special needs can also be very emotionally difficult and creates stress upon the family. [more...]
Often times, this initial diagnosis occurs in the neonatal ICU. At Nationwide Children's Hospital, these infants are followed in the NICU follow-up clinic until they turn 2yo and are ready to “graduate”.
We recognize that this graduation of care to another medical team can be an additional stress for families. To ensure a smooth transition, Dr. Amy Newmeyer and Dr. Jessica Foster are now seeing patients in the Neonatal Follow-Up clinic. This allows them to join the early developmental team assessments and begin to establish a working relationship with the family in the care of their child. At that time, if appropriate, education and literature about CP and available services can be provided. In this way, we can provide continuous care coordination services to ensure that there is no lapse in treatment and that all appropriate services are being provided to the child and family.
The NCH Neonatal Department was recently awarded an NIH grant that will help expand services and programs provided to children who have been born prematurely. We are very excited to announce that Dr Nehal Parikh, DO,MS, a Neonatologist and trained clinical investigator, has recently joined the NCH NICU family. [more...]
His goal is to contribute to the understanding, early diagnosis, prognosis, and prevention/treatment of perinatal-neonatal brain injury in high-risk infants by uncovering and eliminating the factors that increase the risk for such brain injury.
One of the most common questions a parent/caretaker will ask has to do with their child’s ability to walk. Movement difficulties are a common side effect of cerebral palsy and the degree of the difficulty varies among every child. Creating an individualized treatment plan is very important when addressing these concerns. [more...]
Thanks to a new partnership with the Ohio State University Department of Physical Medicine and Rehabilitation we are happy to announce that we now have access to gait analysis services. Dodd Hall, located on the Main OSU medical center campus, has recently upgraded their motion analysis laboratory with the most innovative equipment available. Pediatric therapists from NCH will be attending an international training course this summer to learn the most up-to-date techniques for gait analysis for children with cerebral palsy. Not only will this service allow us to implement more effective individualized treatment plans, it will also be very helpful in guiding future research to help us further understand the nature of the movement difficulties children with CP experience.
Children’s Advocacy Project is a website dedicated to providing the most up to date information regarding community resources available in the Columbus area. [more...]
In the “Parents Handout” section is a listing specifically dedicated to “Special Needs” that not only lists adapted recreational activities for children with special health care concerns but a wide range of other useful information about available community resources. You can find this resource at cap4kids.org/Columbus. If you do not live in the Columbus vicinity and want to find out what is available in your community, you may contact your local County Board of Developmental Disabilities.
The Clinical Therapies Department is offering a wide array of summer group programming for children who qualify. Participation requires a current prescription and evaluation from the appropriate discipline. [more...]
If interested, please contact 614-722-4515 for additional information.
If interested, please contact 614-722-3999 for additional information.
If interested, please contact 614-722-4245 for additional information.
We would like to take this opportunity to share with you the many exciting happenings in the Comprehensive CP Program at Nationwide Children's Hospital. [more...]
The annual Comprehensive CP Team Evaluation has been very successful and we are receiving more referrals than ever. It has been so successful in fact that the wait time for a team evaluation has grown. Obviously we are excited that so many parents and professionals are recognizing the benefit of this team approach, but we also recognize that it is not beneficial to have to wait for an appointment. With this in mind, we are looking at ways to increase the number of team visits per week to accommodate the referrals. Of course, once hospital construction is complete and we get into our new home, we will have a lot more opportunity to grow and expand.
Research continues to be an important focus of the Comprehensive CP Program. We want to make sure that we are providing the best possible care and most effective treatments for all children with cerebral palsy. Many members of our team are involved in some exciting and innovative research and we want to take this opportunity to update you on these projects.
Staff members from the Comprehensive CP Program are again actively participating in the 2010 Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine (AACPDM) in Washington, D.C. in late September. [more...]
AACPDM is the national organization for professionals who care for children with CP and this annual conference is a time in which the leading professionals in the area of CP present current and emerging information on prevention, diagnosis, treatment and technical advances. The focus of this year’s meeting is “Shared Learning: Global Perspective”.
We are excited to announce that Dr. Amy Newmeyer, Director of the CP Program, has been asked to present her research on causes of admission for children with CP across the United States. Dr Newmeyer recognized that if we can understand the reasons children with CP are emergently admitted to the hospital, then we can change treatment practices to help prevent these admissions.
Linda Lowes, PT, PhD from Clinical Therapies will be participating in a presentation on constraint-induced therapy (see Clinical Therapies Research article for more details). Dr. Newmeyer, Dr. Lowes, and Helen Alexander, PT also will be participating in Committee Meetings related to research and treatment outcomes in CP.
AACPDM chose our Nation’s Capitol as a meeting site with the goal of raising the awareness with those who create policy and legislation, with the hope of increasing funding for CP research. Lamara Love, Nursing Care Coordinator, will be participating in a special “Advocacy Day on the Hill” and will meet with U.S. Representatives from our local area to discuss legislative issues related to the care of children with CP.