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Resource List for Parents and Teachers


Each of the books listed here include extensive bibliographies and resource lists.

Hoffman, R.I. (ed). (2012) Educating the Child with Cancer, a guide for parents and teachers, 2nd ed. Kensington MD, USA: American Childhood Cancer Organization. 

Janes-Hodder, H. & Keene, N. (2002). Childhood cancer: A parent’s guide to solid tumor cancers, 2nd ed. Sebastopol, CA:
O’Reilly & Associates, Inc.

Keene, N. (2002). Childhood leukemia: A guide for families, friends, & caregivers, 3rd ed. Sebastopol, CA: O’Reilly &
Associates, Inc.

Shiminski-Maher, T., Cullen, P. & Sansalone, M. (2002). Childhood brain & spinal cord tumors: A guide for families, friends

& caregivers. Sebastopol, CA: O’Reilly & Associates, Inc.

Websites and Organizations:

American Cancer Society: Children and Cancer
(800) 227-2345
Information about diagnosis and treatment of childhood cancers and related issues.

American Childhood Cancer Organization
(855) 858-2226
Provides information, advocacy, support and awareness for children and adolescents with cancer.

(800) 458-6223
Service of the Children’s Oncology Group and the National Childhood Cancer Foundation, providing online information about specific diagnoses, treatments, and effects of treatment.

The Leukemia & Lymphoma Society
(800) 955-4572
Provides information, ongoing education programs, and printed materials for children diagnosed with blood cancers and their families.

National Brain Tumor Foundation
(800) 934-2873
Information for patients with brain tumors, their families, and caregivers.

National Cancer Institute at the National Institutes of Health
(800) 422-6237
Information about the diagnosis and treatment of different kinds of cancer.

Ohio Coalition for the Education of Children With Disabilities
(800) 374-2806
Provides information, training, and assistance to parents of children with disabilities throughout Ohio.

Ohio Department of Education
(614) 995-1545
Information related to children with special needs can be located in the Operating Standards section of the website.

Disability Rights Ohio (formerly Ohio Legal Rights Services)
(800) 282-9181
Provides advocacy resources, publications, and links to guide parents through process of obtaining services for their children in the public school system.

Starlight Starbright Children’s Foundation
(800) 315-2580
Information and resources for critically ill children and their families, including interactive programs for children and teens. On-line community for teens available also.

Teens Living with Cancer
(585) 563-6221
Designed specifically for teens to find cancer information and connect with other teens about issues important to them.

Wright's Law
Information about special education law and advocacy for children with disabilities.

Children's Books about Illness and Courage:

Bridge, C. (2001). Andrew's Story: A book about a Boy who Beat Cancer. Lexington: Lemers Publishing Group. 
An account of survival of childhood cancer told in the voice of a 9 year old.

Cain, B. (2001). Double Dip Feelings: A Story to Help Children Understand Emotions. Washington DC. Magination Press.
This book discusses how it is natural to feel contradictory emotions.

Cole, J. (1989). The Magic School Bus: Inside the Human Body. New York: Scholastic, Inc.
Ms. Frizzle and the students go on a magic school bus ride to learn about how the body works. (Age 5-9).

DeLand, M.M. (2010). The Great Katie Kate Tackles Questions about Cancer. Austin, TX: Greenleaf Book Group Press.
Great Katie Kate is there to answer questions for a young girl with newly diagnosed cancer. Great Katie Kate helps Suzy shrink the Worry Wombat by providing answers about all the things Suzy is experiencing. (Age 5-9).

Foss, K. (1996). The problem with Hair: A Story for Children Learning About Cancer. Omaha, NE: Centering Corporation.
This poem is about friends, including one who loses hair to chemotherapy.

Henry, C.S. & Gosselin, K. (2001). Taking Cancer to School. Plainview, NY: JayJo Books.
Story of school aged boy going through leukemia treatment. He shares about the treatments and feelings involved.(Age 5-9).

Martin, K. (2005). H is for Hair Fairy. Victoria, BC, Canada: Trafford Publishing.
An alphabet book about cancer. (Age 3-8).

Krisher, T. (1992). Kathy's Hats: A Story of Hope. Morton Grove, IL: Albert Whitman & Company.
A story about a young girl who is diagnosed with cancer, loses her hair, and shares her relationship with hats. Her friends welcome her back to school with a hat party. (Age 4-8).

Meyers, B. & Mays, L.C. (2011). The Long and Short of It. Atlanta, GA: American Cancer Society.
Isabel and Emma have two different dilemmas with their hair. Isabel wants hers to grow longer so it will bounce and sway when she dances. Emma wants her hair to grow after it came out with her cancer treatment. The girls learn about Locks of Love and a new meaning of giving. (Age 5-9).

Mills, J.C. (1992). Little Tree: A Story for Children with Serious Medical Problems. Washington DC: Magination Press.
Little tree lived in the forest and when she was damaged by a large storm her friends summoned the tree wizards to help her heal. She was different on the outside after she recovered but was still the special tree her friends remembered. (Age 4-8).

Negron, R. (2006). The Boy of Steel. New York, NY: HarperCollins Publishers Inc.
A young boy who adores the New York Yankees has a brain tumor. He is able to be a batboy for a day and learns important lessons about persistence from Yankee greats. (Age 5-9).

Polacco, P. (2007). The Lemonade Club. New York, NY: Philomel Books.
Two fifth grade friends go through the difficulty of one being diagnosed with leukemia. As the girls are working through their feelings they learn that their teacher is also being treated for cancer. The whole fifth grade class provides the support needed for the journey. (Age 7-10).

Saltzman, D. (1995). The Jester Has Lost His Jingle. Palos Verdes Estates: CA: The Jester Co., Inc.
A jester has lost his laughter and sets off to find it again. With perserverance and support from others, the jester finds that his joy was hiding inside of himself all along. (Age 5-9).

Scott, Liz & Scott, Jay. Alex and the Amazing Lemonade Stand. 2004. Asia/China: BookMasters, Inc.
Alex is a young girl with cancer who finds a way to help other sick children with a lemondade stand fundraiser. (Age 4-7).

Shultz, C. (1990). Why, Charlie Brown, why? New York: Topper Books.
Linus' classmate is diagnosed with leukemia. He and other friends learn about leukemia and provide support for her. (Age 5-9).

Snyder, H. (1998). Elvin the elephant who forgets. Wolfeboro, NH: L&A Publishing/Training, Inc.
A story about an elephant that can help children learn about brain injury and its effects on home and school.

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