Online Cancer Resources :: Nationwide Children's Hospital

Hematology/Oncology & BMT Online Resources

The following is a list of Web sites with information that may be helpful to families dealing with cancer or a blood disorder. Use our categories below to help find the information you are searching for.

 

Support for Kids and Their Families

Adventures for Wish Kids
http://www.afwkids.org/
Adventures for Wish Kids is a 501(C)(3) not-for-profit organization that provides continuing support and lasting memories for children and adolescents with life threatening illness and their families. helps these children and their families by providing opportunities to: network with other families with similar problems and find the best way to deal with them, support each other emotionally, escape their problems for a short time, enjoy life in a more meaningful way

Hope Street Kids
http://www.hopestreetkids.org/
“The mission of Hope Street Kids is to eliminate childhood cancer through cutting-edge research, advocacy and education.”

Kids ‘N Kamp
http://www.kidsnkamp.org/
“A lifeline of support for families touched by childhood cancer” The mission of Kids 'n Kamp is to provide children who have been diagnosed with childhood cancer with unique programs and services that focus on their emotional, educational and social well being and enable them to engage in family recreational activities.

 

General Cancer Overview

The American Brain Tumor Association
http://www.abta.org
A source for information about brain tumors, treatment options, clinical trials and living with a brain tumor. Includes a broad variety of social work resources and services.

American Cancer Society
http://www.cancer.org
Includes information about specific cancers, treatment options and decisions, clinical trials, coping strategies, Cancer Suvivors Network and support programs, etc.

Candlelighters Childhood Cancer Foundation
http://www.candlelighters.org/
Candlelighters Childhood Cancer Foundation is committed to the mission of providing support, education & advocacy for children and adolescents with cancer, survivors of childhood/adolescent cancer, their families & the professionals who care for them.

Childhood Brain Tumor Foundation
http://www.childhoodbraintumor.org/
Founded by families, friends and physicians of children with brain tumors, its mission is to raise funds for scientific research and heighten public awareness of this devastating disease and to improve prognosis and quality of life for those that are affected. Includes online newsletter for families and informational articles.

Curesearch                                                                                                
http://www.curesearch.org
Representing the combined efforts of the National Childhood Cancer Foundation and the Children’s Oncology Group. Find information related to a specific cancer type, treatment stage, and age group, as well as tips on navigating the healthcare system and how to get support.

The Leukemia and Lymphoma Society: Fighting Blood Cancers
http://www.lls.org
Includes disease information, free materials, information about clinical trials, medical news and discussion boards.

National Bone Marrow Transplant Link
www.nbmtlink.org or 800-546-5268
Helps patients and their families meet the many challenges of bone marrow/stem cell transplant by providing vital information and support services.  The nbmtLINK offers three original publications, an Emmy-award winning video, webcasts, peer support, an online library, and telephone and in-person support groups.

National Cancer Institute                                                                     
http://www.nci.nih.gov/
General information about all types of cancer, including childhood cancers. Topics include treatment, testing, risk factors, coping with cancer, research, nutrition, etc. Booklets may be downloaded for free.

National Children’s Cancer Society
http://www.nationalchildrenscancersociety.com/
The mission of The National Children's Cancer Society is to improve the quality of life for children with cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, and education.

 

Sites on Grief Support and Bereavement

Compassionate Friends
http://www.compassionatefriends.org/
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.

Loss, Grief and Bereavement (NCI)
http://www.cancer.gov/cancerinfo/pdq/supportivecare/bereavement/patient
This summary describes loss, grief, and bereavement; the stages of grief; and methods for coping with grief. This summary also includes sections on children and grief.

 

Sites on End of Life Care

MedlinePlus.gov: Death and Dying
http://www.nlm.nih.gov/medlineplus/deathanddying.html
Includes links to “End of Life Care: Questions and Answers” (NCI); end of life decision making, advanced directives, special section for children (e.g. “Helping younger people cope with death and funerals”)

 

Sites on Hospice, Palliative Care and Support

Cancer: Palliative Care from The American Academy of Family Physicians - What is palliative care?                                                                                
http://familydoctor.org/722.xml
Fact sheet that describes the concept of palliative care, where it is provided, pain management & symptom relief, and coping by patient & family members.

Caring Bridge
http://www.caringbridge.org/
CaringBridge is a nonprofit organization providing the oldest, most widely used free online service connecting patients to friends and families.

Children’s Hospice International (CHI)
http://www.chionline.org/
CHI is a non-profit organization founded in 1983 to promote hospice support through pediatric care facilities, to encourage the inclusion of children in hospice programs, and to promote the hospice perspective all areas of pediatric care. CHI provides education, training and technical assistance to those who care for children with life-threatening conditions and their families.

Hospice Facts from the National Cancer Institute
http://cis.nci.nih.gov/fact/8_6.htm
Gives an overview of the hospice concept and provides links to The National Hospice and Palliative Care Organization, The Hospice Association of America , The Hospice Education Institute, The American Cancer Society, and Hospice Net.

National Hospice and Palliative Care Organization
http://www.nhpco.org/
NHPCO is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. The website includes general information on hospice and palliative care, insurance, how to select a hospice, end-of-life care, etc. Also includes information in Spanish.

 

Additional Useful Sites

Clinical Trials                                                                                
http://www.clinicaltrials.gov
Provides regularly updated information about federally and privately supported clinical research in human volunteers.

National Organization for Rare Diseases (NORD)
www.rarediseases.org
Access to more than 1,100 reports on rare disorders.

MedlinePlus
www.medlineplus.org
MedlinePlus.org has extensive information from the National Institutes of Health and other trusted sources on over 650 diseases and conditions.

Road Of Life
www.roadoflife.org
Road of Life is a 501 (c) 3, for-impact organization with a mission to eradicate preventable cancer and diseases of excess by educating children about tobacco use, physical activity, and nutrition.

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