Hometown: Sunbury, Ohio
Diagnosis: Crohn's Disease
Lydia was hospitalized when she was 4 1/2 years old for a large perianal abscess. The abscess would not heal and she was in and out of Nationwide Children's Hospital for the next three months.
Before her fifth birthday, Lydia was diagnosed with Crohn's Disease, a chronic, and painful, inflammation of the intestines which can involve any part of the intestine, small or large, and irritate not only the lining, but also deeper layers.
Lydia has had many procedures under anesthesia, multiple MRI's and occasional hospital stays. She also has to take many medications to manage her disease. The medications are a fine balancing act. One of them necessitates her staying home from school on the days she receives it. It also leaves her immune compromised, so her family worries about her catching viruses. Another concern is that she can't receive all of her immunizations while receiving that medication.
Lydia has missed a lot of school and cheerleading practice because of her Crohn’s Disease, but she is always very positive and hopeful for a cure. She was the honorary hero for the Crohn’s and Colitis Foundation of America Take Steps Walk in Columbus last summer and shared her story with many businesses and the walk participants. Lydia’s mom, Natasha, says “Crohn's is a very personal disease and I am so proud of her and her bravery.”
Lydia loves to tumble and is on a competitive cheer team. She likes to roller skate and, like many kids her age, is happy doing anything with her friends.
She loves to go shopping. She enjoys getting her nails done. When Lydia grows up, she wants to be a nurse and to help other sick children.
What does Nationwide Children's mean to Lydia’s mom?
“Nationwide Children's Hospital means the world to me. It is the physicians who figured out what was wrong with Lydia. I am grateful to have such a wonderful facility so close to our home. We have interacted with many different departments throughout the last 6 ½ years. I can't say enough about the infusion clinic. The staff in the infusion clinic has become part of our family. I guess that happens easily when you see them every 5 weeks. They treat Lydia so well and know just what to say to her to get her to smile. I am not sure what we would do without Nationwide Children's. I am grateful for everyday they help my daughter remain an active 10 year old.