Hometown: Dublin, Ohio
Diagnosis: Duchenne Muscular Dystrophy
Jackson was diagnosed with Duchenne Muscular Dystrophy (DMD), a fatal neuromuscular disease, 3 years ago at the age of 5.
Affecting mostly boys, the disease slowly destroys muscle fibers in every part of the body, including the heart. DMD eventually steals a child’s ability to walk, run and breathe.
Twenty years ago, most children with DMD would die of heart failure in their teens or early twenties. That changed when Dr. Jerry Mendell of Nationwide Children’s Hospital, working with other clinician scientists, proved that steroid therapy could significantly slow the disease’s progression. The treatment ultimately became the standard of care worldwide, extending the lives of thousands of children.
Jack loves sports, but can't play mainstream sports because of Duchenne. He loves Xbox One and has an impressive Lego collection. He recently joined a Lego Robotics club at school. Jackson wants to grow up to be a policeman.
What does Nationwide Children's mean to Jackson’s mom?
“Nationwide Children's is a world leader in breakthrough therapies to treat Duchenne. We consider ourselves very lucky to live in Columbus where our son has access to the best care possible. The neuromuscular clinical staffs are so committed to ending this devastating disease, and I truly believe they will. Nationwide Childrens gives us hope that we may be able to change our son's future from one of certain death to one of survival. Nationwide Childrens truly is the only ray of hope we, or many families around the world, have of beating Duchenne's odds.”