Hometown: Columbus, Ohio
Diagnosis: Microtia Atresia and Goldenhar Syndrome
Fred’s story is looking much better these days. He may only be five, but he has faced some serious challenges. Among these are that he has been diagnosed with Microtia Atresia and Goldenhar Syndrome. The first is a deformity which requires surgery to rebuild the ear structure and restore hearing. The second is a condition formally known as Hemifacial Microsomia (HFM) in which the tissue on the side of the face is underdeveloped, affecting primarily the aural (ear), oral (mouth), and mandibular (jaw) areas.
In the past couple years Fred has become a frequent patient of Nationwide Children's Hospital and has undergone several surgeries. But this has not stopped him from becoming an amazing, funny, and confident 5 year old. He loves to run and jump. He also loves the beach and all kinds of water sports. He is very smart and doesn't miss a thing.
What Does Nationwide Children's Hospital Mean to Fred’s Mom?
“Children's has become a place of healing for us. Through the surgeries and care, we have found friends. Never has Freddie felt anxious or scared about coming to the "Butterfly" doctor. I think he actually looks forward to it. We know we have several surgeries down the road, and we are looking forward to spending time with our friends.”