(From the January 2014 issue of Research Now)
The Patient-Centered Outcomes Research Institute (PCORI) recently awarded $93.5 million to 28 existing research networks across the country to form a new and highly representative national network—named PCORnet—aimed at boosting the efficiency of health research. Nationwide Children’s Hospital is a member of one of the networks funded: the Pediatric EHR Data Sharing Network (PEDSnet).
PEDSnet is led by The Children’s Hospital of Philadelphia and includes eight of the nation's largest children's hospital health systems. Veronica Vieland,PhD, director of the Battelle Center for Mathematical Medicine, serves as Nationwide Children’s Hospital principal investigator.
The new network will improve the nation’s capacity to conduct comparative effectiveness research efficiently and to learn from the healthcare experiences of millions of Americans. Also, by requiring that the health systems, clinicians, and patients who generate data be involved in all aspects of the governance and use of those data, PCORnet aims to facilitate the shift in health research from researcher-driven to patient-centered research.
“We are pleased that PEDSnet will be part of this exciting initiative to build the data structures needed to significantly enhance the speed and efficiency of patient-centered comparative effectiveness research,” said Joe Selby, PCORI executive director. “The process to select the awardees was very competitive and PEDSnet demonstrated it has the expertise, resources, and commitment to engaging patients and other stakeholders to be an excellent fit in PCORnet.”
"I'm very pleased that The Research Institute at Nationwide Children’s Hospital will be one of the founding partners in PCORnet,” said Dr. Vieland. “We were an early adopter of the electronic medical records and this project is part of our broader initiative to greatly expand our ability to use the EMRs for research.”