Columbus, OH - December 2016
Nationwide Children’s Hospital and SeizureTracker.com — which hosts the largest database of patient-centered seizure and treatment data in the world — have recently introduced a new wearable app for patients with epilepsy and their caregivers.
“The benefits of Track It! are not only that patients and parents are able to better track and help their own children, but also that they are helping others by participating in a shared database used by researchers studying epilepsy across the globe,” says Dr. Patel, who is also an assistant professor of Clinical Pediatrics and Neurology at The Ohio State University College of Medicine. “We know seizure counts are often underestimated, so we started working with The Research Institute’s Research Information Solutions and Innovation department at Nationwide Children’s to come up with a technological solution.”
Nationwide Children’s established a relationship with SeizureTracker.com, whose online platform allows patients with epilepsy to record seizure data, keep logs and share information with caregivers and clinicians. Researchers say understanding the progression of epilepsy on an individual and community level depends on the quality of seizure data reported by patients.
The SeizureTracker.com database will have logged more than 1.5 million events by the end of 2016. The collaboration linked SeizureTracker.com’s commitment to providing clinical and research data with the seizure tracking wearable that Nationwide Children’s wanted to make available for their patients and families.
Track It! is available for the Apple Watch in the Apple Store. Logging a seizure event is as simple as tapping the wearer’s wrist. The app increases access to an extensive seizure diary system for patients and care providers while improving the data quality for research.
“After a diagnosis of epilepsy, my wife and I quickly realized how important it was to collect good data surrounding our son’s seizures,” says Robert Moss, co-founder of SeizureTracker.com. “The ability to share that information with our care providers made a meaningful impact on how our son’s epilepsy was treated. SeizureTracker.com and the new Apple Watch app will make collecting and sharing quality seizure information much easier.”
Nationwide Children’s and SeizureTracker.com have already collaborated on research; an October publication in Epilepsy & Behavior examined the features that patients with epilepsy and their caregivers feel are most important in a wearable tracker.
“The unique part of this technology is how the app, while keeping data confidential and compliant, interfaces with the Seizure Tracker database, which available to researchers,” says Simon Lin, MD, MBA, chief information officer of The Research Institute at Nationwide Children’s. “About 1 in 100 people in the United States have epilepsy, and our goal with this collaborative project is to make a tremendous difference for those studying causes and treatments of seizures, ultimately providing best outcomes for patients everywhere.”
Patel AD, Moss R, Rust SW, Patterson J, Strouse R, Gedela S, Haines J, Lin SM. Patient-centered design criteria for wearable seizure detection devices. Epilepsy & Behavior. 2016 Oct 11 ;64(Pt A):116-121.