Leading the way for high risk babies with congenital heart disease
The Heart Center at Nationwide Children’s has launched a Home Monitoring Program for newborn infants with congenital heart disease who have undergone surgical or catheter therapy. The Home Monitoring Program was one of the first developed in the state of Ohio. This program arms parents with the ability to monitor weight and oxygen levels at home to help prevent illness and to provide early detection of changing cardiac status. Heart Center Nurse Clinicians keep in close contact with the families and monitor the data for any significant changes. Patients from Ohio and from additional states including North Carolina, Wisconsin and Texas have been monitored.
The Heart Center team is also involved with the Joint Council on Congenital Heart Disease - National Collaborative for Improvement in Pediatric Congenital Heart Disease data registry. This multi-center collaborative data registry study is studying and monitoring inter-stage variables and outpatient monitoring points to ultimately improve care, outcomes and mortality in newborn patients with complex congenital heart disease.
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