Clinical Research Study Viewer

Youth and Young Adult Resilience Study

What is the purpose of this study?

The Youth and Young Adult Resiliency Study explores how differences of sex development (DSD) impact quality of life. This is a collaborative study between Nationwide Children's Hospital and Boston Children's Hospital. During this study, healthcare providers aim to learn what factors lead to the best outcomes for patients with DSD. With this information, providers hope to be proactive in supporting patients with DSD so that they can be their happiest and healthiest selves.

Who can participate in this study?

  • Youth and young adults ages 12-26 with differences of sex development (DSD)
  • Participants must be able to read and understand English

What will happen during this study?

  • You will complete an online questionnaire about how your feelings and experiences impact your well-being.
  • This questionnaire will be completed once at your convenience and will require about 40 minutes of your time.
  • A select number of participants will also complete a single face-to-face interview.
  • Participation in this research study is voluntary and may be discontinued at any point during the project.
  • Your participation or lack thereof will not impact your care at Nationwide Children's Hospital.
  • You will be compensated for your time.

Who can I contact for more information?

To learn more or participate in the Youth and Young Adult Resiliency Study, please contact Hillary Kapa, Clinical Research Coordinator, at 614-722-2830 or

Nationwide Children's Hospital
700 Children's Drive Columbus, Ohio 43205 614.722.2000