This study is a registry for patients with Duchenne Muscular Dystrophy (DMD). Patients with DMD develop cardiomyopathy, or weakening of the heart muscle, and heart failure as the disease progresses. Some patients will experience Sudden Cardiac Death (SCD). Researchers want to find out what the risk of SCD is in patients with DMD. Researchers also want to find out if having an implantable cardioverter-defibrillator (ICD) will benefit patients by preventing SCD related to abnormal heartbeats. They also would like to know if patients with ICD’s suffer complications from the device.
This study is for patients who are at least 10 years old, have Duchenne Muscular Dystrophy or Becker Muscular Dystrophy, and have a weak heart (ejection fraction less than 55%) or a heart device (for example, a pacemaker or ICD).
During this study, we will collect information about your health from your medical records and record it in an electronic database.