Clinical Research Study Viewer

Sudden Cardiac Death in Duchenne Muscular Dystrophy and Becker Muscular Dystrophy: Incidence and Prevention Patient Registry

What is the purpose of the study?

This study is a registry for patients with Duchenne Muscular Dystrophy (DMD). Patients with DMD develop cardiomyopathy, or weakening of the heart muscle, and heart failure as the disease progresses. Some patients will experience Sudden Cardiac Death (SCD). Researchers want to find out what the risk of SCD is in patients with DMD. Researchers also want to find out if having an implantable cardioverter-defibrillator (ICD) will benefit patients by preventing SCD related to abnormal heartbeats. They also would like to know if patients with ICD’s suffer complications from the device.

Who can participate in the study?

This study is for patients who are at least 10 years old, have Duchenne Muscular Dystrophy or Becker Muscular Dystrophy, and have a weak heart (ejection fraction less than 55%) or a heart device (for example, a pacemaker or ICD).

What will happen during the study?

During this study, we will collect information about your health from your medical records and record it in an electronic database.

Who can I contact if I am interested or if I have any questions?

If you feel you may be eligible, please call 614-722-0494 or contact the study coordinator, Susan Meyer at Susan.Meyer@NationwideChildrens.org. You may also download the study flyer here.

Nationwide Children's Hospital
700 Children's Drive Columbus, Ohio 43205 614.722.2000