This project will help us find out more about how children and their families adjust after children have suffered a stroke. One way for us to know how strokes affect children is to compare them with children who have not had any injury to their brains.
In the long run, we believe this study will help children with strokes receive better care. We also hope to share what we learn with others, so that we can help children across the country.
We are looking for children between the ages of 7 and 18 years old who have either suffered a stroke or are healthy. We will be comparing the social functioning of the two groups of children.
If you choose to participate, your child will come to Nationwide Children's Hospital or the Ohio State University for three study visits. Each visit will last about 1-4 hours. Your decision to participate is completely voluntary. If you decide not to participate, it will not affect your child's care at Nationwide Children's Hospital now or in the future.
There are no major risks from being enrolled in this study. The study does NOT involve pills, needles, radiation or any other risky or painful medical procedures. Certain individuals should not have an MRI scan, and we will ask questions to be certain that we can safely perform an MRI scan on your child.
There is a slight chance that your child could become anxious about the testing, or you could become upset while discussing your child's medical condition. If your child becomes too nervous in the MRI scanner, we can stop the test. Our research staff is experienced in testing children and in working with families. They will do all they can to make participating in the study a pleasant experience for you and your child.
There is no cost for this study, apart from your time. We will not bill you or your insurance company for participation in the study. Your child will also receive modest compensation for their time, because you will be doing us a favor by participating in the study.
You will get feedback on how your child did on the tests. You will also have the satisfaction of knowing that you have helped improve our understanding of children with strokes. Only you, the project staff and our internal research ethics board will have access to results on your specific child. No names or information that identifies your child will be included in any publication or presentation.
For more details, please contact Katlyn Latimer at (614) 722-2575 or Katlyn.Latimer@NationwideChildrens.org.