Family Well-Being Study
What is the purpose of this study?
The Family Well-Being Study aims to increase healthcare provider understanding of how differences of sex development (DSD) affect the quality of life of children and their families. With this information, we hope that providers will learn how to best support patients with DSD and develop programs addressing their specific needs so that they can thrive.
Who can participate in this study?
Parents of children ages 0-19 with differences of sex development (DSD)
Participants must be able to read and understand English
What will happen during this study?
You will complete an online questionnaire that will be used to understand the thoughts and feelings of parents of children affected by congenital conditions.
This questionnaire will be completed once at your convenience and will require about 40 minutes of your time.
Participation in this research study is voluntary and may be discontinued at any point during the project.
Your participation or lack thereof will not impact your family's care at Nationwide Children's Hospital.
You will be compensated for your time.
Who can I contact for more information?
To learn more or participate in the Family Well-Being Study, please contact Hillary Kapa, Clinical Research Coordinator, at 614-722-2830 or ThriveStudies@NationwideChildrens.org.