Clinical Research Study Viewer

Family Well-Being Study for Parents of Healthy Youth

What is the purpose of this study?

The Family Well-Being Study seeks to understand how children’s congenital conditions impact the psychosocial well-being and quality of life of their parents and families.

Who can participate in this study?

  • Parents of physically and mentally health children ages 0-19 years old who will act as matched controls for patients affected by congenital conditions
  • Participants must be able to read and understand English

What will happen during this study?

  • You will complete an online questionnaire about how your feelings and experiences impact your well-being.
  • This questionnaire will be completed once at your convenience and will require about 40 minutes of your time.
  • Participation in this research study is voluntary and may be discontinued at any point during the project.
  • Your participation or lack thereof will not impact your family’s care at Nationwide Children's Hospital.
  • You will be compensated for your time.

Who can I contact for more information?

To learn more or participate in the Family Well-Being Study, please contact Hillary Kapa, Clinical Research Coordinator, at 614-722-2830 or

Nationwide Children's Hospital
700 Children's Drive Columbus, Ohio 43205 614.722.2000