Family Well-Being Study for Parents of Healthy Youth
What is the purpose of this study?
The Family Well-Being Study seeks to understand how children’s congenital conditions impact the psychosocial well-being and quality of life of their parents and families.
Who can participate in this study?
Parents of physically and mentally health children ages 0-19 years old who will act as matched controls for patients affected by congenital conditions
Participants must be able to read and understand English
What will happen during this study?
You will complete an online questionnaire about how your feelings and experiences impact your well-being.
This questionnaire will be completed once at your convenience and will require about 40 minutes of your time.
Participation in this research study is voluntary and may be discontinued at any point during the project.
Your participation or lack thereof will not impact your family’s care at Nationwide Children's Hospital.
You will be compensated for your time.
Who can I contact for more information?
To learn more or participate in the Family Well-Being Study, please contact Hillary Kapa, Clinical Research Coordinator, at 614-722-2830 or ThriveStudies@NationwideChildrens.org.