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Clinical Outcomes Studies in Becker Muscular Dystrophy (BMD) and Sporadic Inclusion Body Myositis (sIBM)

Purpose of study:

Nationwide Children’s Hospital is currently recruiting participants to determine the validity of several outcome measures that may be used for future clinical studies.

Your participation will help design the tests to be performed to measure patient improvement in future clinical trials. We will also add your information to our list of patients who you would like to be contacted about upcoming clinical trials for their specific diagnosis.

Who can participate in this study:

Participants must be able to walk for 6 minutes and have a documented diagnosis of:

Sporadic Inclusion Body Myositis (sIBM) or
Becker Muscular Dystrophy (BMD)

Participants will be asked to perform timed functional tests such as standing up from a chair, walking for 6 minutes, and having muscle strength tested.

Who to contact:

Interested individuals should contact:
Linda Lowes
Linda.Lowes@NationwideChildrens.org

or

Lindsay Alfano
Lindsay.Alfano@NationwideChildrens.org

or call (614) 722-6881 

Nationwide Children's Hospital
700 Children's Drive Columbus, Ohio 43205 614.722.2000