Avery’s heart condition was discovered at her 20 week ultrasound, allowing her family the blessing of having time to plan and prepare for the journey ahead. Avery had her first of three open heart surgeries, the Hybrid, when she was just three days old. After a few steps backward and a month-long hospital stay, her family was able to go home together. They spent the next three weeks bonding as a family of four and Avery found her best friend in life, her sister Ellery.
At two months old Avery was unexpectedly readmitted to the hospital to have a stent placed in her retrograde aortic arch. In the following weeks, Avery awed her family by continuing to prove her strength and meeting milestone after milestone. At four months, Avery had the second of her three surgeries, the Comprehensive Stage II Surgery. She recovered well and returned home after 11 days – just in time to enjoy Christmas and the New Year with her family. At eight months, Avery needed to have her Pulmonary Arteries ballooned in the cath lab due to their small size. Once again, Avery did very well with this procedure. At 10 months old Avery needed a stent placed in her aortic arch. In January 2014, almost two years post her last cardiac procedure, Avery went back to the cath lab for her pre-Fontan Cath. Avery is approaching her third planned surgery, the Fontan, on July 9, 2014 – just 6 weeks before the Nationwide Children’s Hospital 200. Avery knows that her heart will need some tender loving care from her doctors at the Hospital and that her “zipper” will be used to find her heart. Avery’s family credits her with teaching them to love and persevere like they never knew possible. They love to show off her bright eyes, infectious smile, and bubbly personality. Though Avery may only have half a heart, she has a personality that is larger than life to make up for it.