Utilizing a team of experts, Nationwide Children’s Hospital has assembled an organized program to assist referring health care providers in caring for patients with progressive lung or heart-lung disorders.
Under the Department of Pulmonary Medicine, the Advanced Lung Disease program consists of programs for cystic fibrosis, pulmonary vascular disease, interstitial lung disease and neonatal lung disease. Physicians see patients throughout all stages of care from early to late-stage diagnosis.
The goal of the program is to collaborate with physicians in medically managing their patients and if needed, expedite a patient’s evaluation for lung or heart-lung transplantation.
If transplantation is deemed necessary, the team at Nationwide Children’s Hospital has a “toolbox” containing a full spectrum of mechanical assist devices, designed for short- to long-term use, in order to reduce morbidity and improve patient survival. Devices used to bridge pediatric patients to transplant include ambulatory ECMO and artificial lung technology.
Patients who may benefit
Dyspnea is a very common complaint in pediatric, adolescent and young adult patients with pulmonary disorders. We assess dyspnea following guidelines determined by the New York Heart Association (NYHA) Functional Classification, which uses four categories based on physical activity limitations:
Class II (mild)
Class III (moderate)
Class IV (severe)
For any patient that is NYHA Class IV or Class III unresponsive to standard therapy, our team may provide services that could either assist in medical management or may expedite their evaluation for lung or heart-lung transplantation.
The initial evaluation and treatment focuses on therapies available for the specific lung diseases classified as:
The work-up and treatment of these advanced lung diseases follows along a continuum. At some point, the dyspnea reaches levels refractory to typical medical management that may limit the patient’s ability to participate in activities of daily living. At that time, we can evaluate a patient for lung or heart-lung transplantation. For patients with advanced lung disease including acute respiratory decompensation, our Ambulatory ECMO and Artificial Lung Program is available, and we have the capability of transporting patients on ECMO if needed.
Advanced Lung Disease Team
We have a comprehensive team with expert pulmonologists, cardiologists, cardiothoracic surgeons, respiratory therapists, perfusionists, nurses and technicians.
Physician Direct Connect Line
A 24-hour physician consult-transfer center for providers, managed by experienced RNs who can assist in caring for their children by being a single point of contact.
(614) 355-0221 or 1-877-355-0221 (toll-free)