A Healthy You and 22q Conference Agenda :: Nationwide Children's Hospital

A Healthy You and 22Q - Conference Agendas

Agenda

7 a.m. Check-in
8 a.m. Welcome
8:15 a.m. Special Message
8:30 a.m.

Integrating Cognitive, Affective and Environmental Factors to Understand Mental
Health in Youth with Chromosome 22q11.2 Deletion Syndrome
Tony Simon, PhD

9:30 a.m.

Break


9:45 a.m.
Living with 22q Messages of Inspiration
Molly- mother of a young child with 22q
Kim- mother of a young adult with 22q
Inez- young adult with 22q
Derrek- father of a child with 22q
Michelle- mother of a teen with 22q
10:30 a.m. Genetics Panel
Clinical: Genetics Overview of the 22q11.2 Deletion Syndrome
Scott Hickey, MD

22q: A MolecularGenetics Update
Vidu Garg, MD

Genetic Counseling and Reproductive Implications for persons with 22q
Shannon Garner, MS, CGC

11:30 a.m.
Picnic in the Park - a 22bbq
With music, magic and fun

1:15 p.m.
Roundtable Briefing
1:30 p.m.

Live Roundtable Sessions
45 minute roundtable discussion with local and national experts. Groups are divided
by age of child- young child, school age and teens. All presentations will be geared to
address the special needs of children in each age group. Live broadcast over the internet.

Speech and Speech Surgery
Richard E. Kirschner, MD and Adriane Baylis, PhD, CCC-SLP

ENT, Airway, Feeding & Dental Issues
Jonathan Grischkan, MD, Peter Spalding, DDS and
Lauren Keil, MS, CCC-SLP

The Mind
Tony Simon, PhD, Canice Crerand, PhD and
Richard Gilchrist, MD


4:15 p.m.
Coming Together: A Special Presentation from Our Kids

4:30 pm.
Evaluation and Adjourn

Late High School/College Track (16-24)

This group will follow the adult track until 10:30 a.m.

10:30 a.m.
Cyber-Bullying
Arriebelle Kinney
11 a.m. Life Transitions
11:30 a.m. Picnic in the Park - a 22bbq
With music, magic and fun
1 p.m. Friends and Relationships
Lisa Repaske, MSW, LISW and Heather Bowman
2 p.m. Break
2:15 p.m. Living in the Real World with 22q
Kim and Inez MiLee
3 p.m. It’s All About You
4 p.m. Evaluations
4:15 p.m. Coming Together: A Special Presentation

Young Teens (12 - 15)

8 a.m. Icebreaker
8:15 a.m. Social Skills Role Playing
Anne Marie Polovick, M.A, CCC-SLP
9 a.m. Advocating for Yourself
9:30 a.m. Minute to Win it!
10 a.m. The Best of the Web
Linda DeMuro, MLS
10:30 a.m. Cyber Bullying
Arriebelle Kinney

11 a.m.

Therapy Dog Visit
11:30 a.m. Picnic in the Park - a 22bbq
With music, magic and fun

1 p.m.
Dancing with the Stars
Presented by Ballet Met Columbus

2 p.m.
Origami
Presented by Capital Area Paper Shapers

4 p.m.
Program Evaluation

4:15 p.m.
Coming Together presentation with parents
4:30 p.m. Adjourn

School Age (7-11)

8 a.m. Icebreaker
8:15 a.m. Self Esteem
8:45 a.m. Marching to Your Own Tune
Ann Urbanek, music therapist
9:15 a.m. Kasey the Fire Dog
Fire Safety presented by Koorsen Fire and Security
9:45 a.m. Just Flash: Book and Activity
Flash is the only animal of his kind, but he wishes he could belong to
a pack. He tries to become another animal, in order to fit in. He tries
to be a giraffe; he tries to be a gazelle; he even tries to be a zebra. Along
the way, though, Flash realizes that it’s more rewarding to be himself.
11 a.m. Therapy Dog Visit
11:30 a.m. Picnic in the Park - a 22bbq
With music, magic and fun

1 p.m.
Dancing with the Stars
Presented by Ballet Met Columbus

2 p.m.
Origami
Presented by Capital Area Paper Shapers

4 p.m.
Program Evaluation

4:15 p.m.
Coming Together presentation with parents
4:30 p.m. Adjourn

Child Care

Children in the Pre-K group will have structured activities such as story time, movement, music and crafts but will also be allowed plenty of free play. Children must be age 3 or older and toilet trained.

Nationwide Children's Hospital
700 Children's Drive Columbus, Ohio 43205 614.722.2000